Pre-Conference Tutorials and Panels

James P Kiley, PhD, is the Director of
the Division of Lung Diseases, NHLBI,
National Institutes of Health (NIH).
He was previously Director of the
National Center on Sleep Disorders
Research at the NHLBI, and heightened
public awareness of sleep disorders. He
has published numerous scientific papers in the
fields of Respiratory and Cardiovascular disease.
Leonard Jason, PhD, is a prolific
CFS/CFIDS/ME researcher. For more
than a decade, Jason and his team at
the Center for Community Research of
DePaul University, have worked to
define the scope and impact of CFS
worldwide. He co-wrote the
“Handbook of Chronic Fatigue Syndrome.”
Janet Whitley, PhD, a Regulatory
Review Scientist with the FDA, OOPD,
administers the provisions of the Orphan Drug Act which provide incentives
for the development of medical products for serious and life-threatening
conditions. She was previously a graduate fellow at the National Academies of Science.
Trevor G Marshall, PhD, researched
such diverse fields as Cryptorchidism,
Male/Female Infertility, and Insulin
infusion (in Diabetes). Most recently he
has deduced and published a bacterial
pathogenesis for the Th1 diseases,
including Chronic Lyme, CFS and
Sarcoidosis. The ‘Marshall Protocol’ has successfully evolved from his pathogenic description.
Lida H Mattman, PhD, has
spent seven decades studying
the different forms that bacteria can take, publishing the
textbook on Stealth Pathogens,
“Cell Wall Deficient Forms.”
In 1998 she was nominated for
the Nobel Prize in Medicine.
Andrew Wright, MD, is researching the
bacteriological causes of 'Fatigue
Spectrum Disorders,' especially CFS/ME
and Fibromyalgia, and is using innovative High Resolution Dark-field and
Phase-Contrast Microscopy. He is also
pursuing joint projects with the
Microbiological Units of several UK Universities.
This Conference will bring together Physicians,
Patients, and Policy-makers, to review the effectiveness of anti-bacterial therapy in Th1 disease, especially in Sarcoidosis, Chronic Lyme, CFS and RA.
ARF website moderators will be present, in addition
to early-adopters in advanced stages of recovery
from each of these diseases, ensuring that all attendees have ready access to experienced mentors.
PRELIMINARY Conference Schedule
Saturday March 12:
8am-1pm: Registration in Washington Ballroom lobby
9am-11am: Rheumatic.org session on RA
10am-12noon: Pre-conference Marshall Protocol
tutorials
12noon-1pm: Deli Lunch Buffet ‘with the Experts’ $25
1pm - Conference Starts - Plenary Session:
1pm: CONFERENCE KEYNOTE - Dr James P Kiley,
“The NIH, NHLBI and Sarcoidosis.”
1:45pm: Dr Leonard Jason, “Diagnosis and Incidence
of Chronic Fatigue Syndrome.”
2:30pm: Cmdr Linde-Feucht, "Development and
Assessment of Orphan Drugs at the FDA."
3:30pm: Dr Trevor G Marshall, “Genomics, Molecular
Medicine, and Antibacterial Therapy.”
4pm: Dr Lida H Mattman, “Stealth Pathogens.”
5pm: Dr Andrew Wright,”Bacteria of Chronic Fatigue”
5:45pm: Panel to introduce distinguished guests
6:00pm: Adjournment
7:30pm: Conference Banquet in Washington Ballroom
Sunday March 13: (Panel/Audience Discussions)
8am: Continental Breakfast in Ballrooom
9am: What degree of healing is possible? How do we
define the end-point(s) of MP therapy?
10am: Familial Aggregation - family histories of Th1
disease - genetics or cross-infection? - when
do we have a responsibility to warn families?
11am: Sunlight - How sensitive does the body
become as it heals?
12noon: Caregivers - particular problems caring for
sick children and relatives with Th1 disease.
1pm: End of formal sessions
1pm-5pm: Informal mixing and discussion sessions
Pre-Conference Tutorials and Panels
Meg Mangin, RN, graduated from
Milwaukee School of Nursing in 1971.
She has held staff nurse positions in
coronary/intensive care at Bellin
Hospital in Green Bay and Luther
Hospital, Eau Claire, Wisconsin. For
the past thirteen years she has provided skilled
home-nursing services in a variety of medical
specialties. Meg headed the Wisconsin LaLeche
League for five years. She is currently serving on an
NIH Data, Safety and Monitoring Board.
Meg will conduct the Tutorials and Panel sessions
with the assistance of the following medical professionals and support personnel:
Greg Blaney, MD (BC, Canada)
Susan Shlifer, MD (Poulsbo,WA)
Frances E (Liz) Marshall, RPh
Lottie Stanley, RN
Reenie Gentile, MT
Paula Carnes, M.Ed
Belinda Fenter, BS
Elizabeth Naugle, BS
Ms Dale Thurlow
The conference organizing committe wishes to
express its special thanks to Ron and Sally Ball,
Donald and Elizabeth Naugle.
Registration fees:
Conference fee: $85
(includes coffee/tea Sat/Sun and continental breakfast Sunday)
Conference Banquet (Saturday night): $50
Optional Deli Buffet Lunch on (Saturday): $25
(All prices include hotel service fee and IL sales tax)
You are responsible for your Hotel Accommodation
Registration is available on-line at URL:
http://www.AutoimmunityResearch.org
or by mailing the form on this brochure.
Registration fees must be received by March 1
The Autoimmunity Research Foundation
(www.AutoimmunityResearch.org)
REGISTRATION FORM
ARF is a not-for-profit corporation, founded by
recovered patients, patient advocates, and
medical professionals. We are dedicated to
“solving the enigma of ‘autoimmunity,’ one disease at a time.” Our volunteer research staff
has published several key papers.
Please register at http://AutoimmunityResearch.org
This form is only for those without Internet access
Internet-based Community Outreach
Volunteers from the ARF run two Internet
message boards, at URLs:
http://www.MarshallProtocol.com
http://www.SarcInfo.com
SarcInfo.com was the site created in 2002 to
host the observational study of ‘Antibiotics in
Sarcoidosis,’ which validated and refined the
therapy currently known as ‘the MP. During
2004 more than 140,000 visitors accessed
SarcInfo.com.
In July 2004 the newer support site at
MarshallProtocol.com was established to allow
staff to more effectively support patients. The
MarshallProtocol.com site has already grown to
support 7000 visitors every month. There is a
special, private, “professionals forum” where
registered Medical Professionals can discuss
confidential patient data.
The Washington Ballroom, where the conference is being held, is in the Holiday Inn Select
at Chicago Midway Airport Hotel Center
http://www.MidwayHotelCenter.com/
Midway Airport (MDW) is served by
Southwest, in addition to the major airlines
http://www.Southwest.com
There is a 24/7 shuttle from MDW to the Holiday Inn Select, and an hourly bus service from
O’Hare airport to Midway airport. There are 3
alternative hotels within 150 yards of the conference hotel: Holiday Inn Express, Hampton
Inn and Marriott Courtyard. The Fairfield is
about 300 yards, and the Sleep Inn about 400.
Conference rate at the HI Select is $129 and at
the HI Express is $119. Please check the ARF
website for the latest updated information.
Name: ......................................................
Address:...................................................
City:..........................................................
State, ZIP:........................................... .......
Phone:.......................................................
Please register me to attend the conference
“Recovering from Chronic Disease”
I will / will not be attending the Conference
Banquet on Saturday. (circle one option only)
I will / will not be eating the Deli Buffet Lunch on
Saturday. (circle one option only)
You are responsible for your Hotel Accommodation.
Please make arrangements directly with the hotel(s)
Fees due no later than March 1,2005:
Conference fee: $85
Conference Banquet: $50
Optional Deli Buffet Saturday Lunch: $25
(All prices include hotel service fee and IL sales tax)
My conference fee(s) are (circle one):
Attached / Will send By March 1
Signed:....................................................................
Please mail a copy of this form to:
Autoimmunity Research Foundation,
3423 Hill Canyon Ave,
Thousand Oaks, CA 91360-1122
A CONFIRMATION will be mailed to you by Feb 28
Registrations not made via the Internet are not
guaranteed until you receive the confirmation letter.
Conference: March 12-13, 2005
Chicago’s Midway Airport Hotel Center
Recovering from
Chronic Disease
SARCOIDOSIS
(Reggie White’s Disease)
CHRONIC FATIGUE SYNDROME
CHRONIC LYME DISEASE
RHEUMATOID ARTHRITIS
FIBROMYALGIA