sickle cell anemia / anémie de cellules de faucille

SICKLE CELL ANEMIA /
ANÉMIE DE CELLULES DE
FAUCILLE
Kaitlin Atkinson Family Resource Library / Bibliothèque de
ressources familiales Kaitlin Atkinson
Resource List / Ressources
@CHEOfrl
@CHEOhospital
Hope and destiny: a patient's and parent's guide to Sickle Cell Disease and Sickle Cell Trait /
Platt, Allan F -- Roscoe, IL: Hilton Pub, 2002.
This resource provides clear-cut and in-depth information on living with the illness. It offers the
information on preventing complications, research, and treatment. The knowledge patients and
family members need is organized in an easy-to-read format that promotes overall healthy living.
FAM RJ 416 .S53 P56
Nutrition for the child with sickle cell disease / Williams, Ruth -- Memphis, TN: St. Jude Children's
Research Hospital, 1996.
This book for children with sickle cell disease contains facts about nutrition, activities to help them
learn about nutrition, and a section for parents.
FAM RJ 416 .S53 W54
Sickle cell disease / Peak, Lizbeth. -- Detroit: Lucent Books, 2008.
Discusses the causes, symptoms, and treatment options for sickle cell anemia and describes what
populations are predisposed toward the disease.
FAM RC 641.7 .S5 P43 2008
Sickle cell disease / Jones, Phill. -- New York: Chelsea House Publishers, 2008.
Explores the scientific discoveries that led to an understanding of the genetic basis of the disease,
explaining how a single mutation in hemoglobin multiplies into the many symptoms of sickle cell
disease. Also investigated are treatments that help individuals manage sickle cell disease
symptoms, and how gene therapy and stem cell therapy may one day lead to a cure for the
disease.
FAM RC 641.7 .S5 J67 2008
Taking control: teenagers living with sickle cell disease / Day, Sara -- Memphis, TN: St. Jude
Children's Research Hospital, 1994.
This booklet has chapters on the following: an overview of sickle cell disease; pain and infection;
general health issues; complications and common treatment options.
FAM RJ 416 .S53 T34
Web Sites / Sites internet
Sickle Cell Anemia – MedlinePlus from the U.S. National Library of Medicine
http://www.nlm.nih.gov/medlineplus/sicklecellanemia.html
Sickle Cell Anemia – About Kids Health / Anémie falciforme (drépanocytose): un guide pratique pour les
parents – About Kids Health
http://www.aboutkidshealth.ca/En/HealthAZ/ConditionsandDiseases/blooddisorders/Pages/Sickle-CellDisease-A-Practical-Guide-for-Parents.aspx
Sickle Cell Anemia - Kids Health – Information for Kids, Teens and Parents from the Nemours Foundation
http://kidshealth.org/teen/diseases_conditions/blood/sickle_cell_anemia.html
Sickle Cell Association of America
http://www.sicklecelldisease.org/
What Is Sickle Cell Anemia? – National Heart, Lung and Blood Institute
http://www.nhlbi.nih.gov/health/health-topics/topics/sca/
CHEO – Bibliothèque Kaitlin Atkinson Library
Sickle Cell Anemia / Anémie de cellules de faucille
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Sickle Cell Awareness Group of Ontario
http://sicklecellanemia.ca/
Anémie falciforme – Santé et services sociaux Quebec
http://www.msss.gouv.qc.ca/sujets/santepub/depistage-neonatal/anemie-falciforme
Association d'anémie falciforme du Québec / Sickle Cell Anemia Association of Quebec
http://anemie-falciforme.org/
Local Contacts / Liaison régionale
Sickle Cell Association of Ontario
4610 Dufferin Street, Suite 205
North York, ON M3H 5S4
416-789-2855
[email protected]
http://www.sicklecellontario.ca/index.html
Association d'anémie falciforme du Québec / Sickle Cell Anemia Association of Québec
7333, rue Saint-Denis, bureau 3.
Montréal, QC H2R 2E5
514-507-0891
[email protected]
http://www.aafq.org/
This guide provides medical material for information purposes only and is not intended to replace
the advice of your physician. The information may not always apply to your individual situation.
The guide represents material available in the Family Resource Library collection at CHEO. It is not
intended to be an exhaustive list. Your local public library may also be able to provide you with
information.
If you require materials in alternative formats, please contact the library at 613-737-7600 ext. 2157
or at [email protected].
Ce guide fournit du matériel médical pour informations seulement et ne vise pas à remplacer les
conseils du médecin. Ces informations pourraient ne pas toujours s'appliquer aux situations
individuelles.
Ce guide présente le matériel disponible à la bibliothèque de ressources familiales du CHEO. Ce
n'est pas une liste complète. Votre bibliothèque publique locale pourrait aussi être en mesure de
vous fournir des informations précieuses.
Si vous avez besoin des documents en formats alternatifs, s’il vous plaît contacter la bibliothèque au
613-737-7600 poste 2157 ou à [email protected].
Last Updated / Mise-à-jour: June 2016 juin
Links Tested / Liens vérifiés: June 2016 juin
CHEO – Bibliothèque Kaitlin Atkinson Library
Sickle Cell Anemia / Anémie de cellules de faucille
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