Anne Lang-Étienne - OT Legacy website
Transcription
Anne Lang-Étienne - OT Legacy website
Muriel Driver Memorial Lecture In praise of dissidence: Anne Lang-Étienne (1932-1991) Key words ■ ■ ■ Rachel Thibeault Human activities and occupation History of occupational issues Professional issues F ive thousand words. How do you summarize, in only five thousand words, a spirit that has moved and shaped a generation of occupational therapists? How do you express a penetrating vision that soared beyond convention to reconcile seeming opposites? How do you capture a complex thought that took a lifetime to elaborate? This is my challenge today: to introduce, in just a few pages, the spirit of Anne Lang-Étienne to those of you who haven’t had the privilege of knowing her. I cannot fool myself. My words will never render her radiant smile, her vivacious disposition or her fierce determination. For Anne Lang-Étienne was not for the faint of heart. She slowly, thoughtfully distilled what she believed essential and passionately fought for her values. She knew herself to be unfashionable. Who else, in the sixties and seventies, spoke of meaning, maturation and justice as core elements of occupational therapy? Who else would discern the flaws of the then dominant medical model and propose changes? Only a visionary, an early-day dissident. Only Anne, a lone but persistent voice in a profession on the verge of profound transformation. Who was Anne Lang-Étienne? A dissident occupational therapist Rachel Thibeault, Ph.D., OT (C) is an Associate Professor in the Department of Occupational Therapy, University of Ottawa 451 Smyth Road, Ottawa, ON K1H 8M5 E-mail: [email protected] World events somehow destined Anne for a career in dissidence. Born in France in 1932, she lost her mother early in life and was raised by her father and two aunts. During the war years she was sent, for her safety, to a farm in the country. There, she experienced unrelenting cold and hunger and felt utterly abandoned. Her childhood was forever gone and until her passing, she would always refer to those times as years of bleakness and pain. As a result, she grew mistrustful of the political body and of all systems that dictate how one should think and behave without allowing for individuality. She tried to understand how a human mind could evolve to see virtue in war and how the lack of wisdom and maturity in our societies pave the way for dictatorships, silent oppression and madness. She chose to embrace a career in health, specifically occupational therapy in mental health. Trained in Paris at La Salpêtrière, one of the best institutions for psychological inquiry even by today’s standards, she delved into psychoanalytical theory and devoted herself to the care of people with a mental illness. After a few years, however, she decided to withdraw. Anne retired to the hills of Provence, as she wanted to experience for herself the full benefit of occupation. As a potter, she reconnected, in her own words, with "the magic of touch, the strong dialogue between hand and matter, and the awareness of inner images." (Lang-Étienne, 1984, p.23). She lived by her craft and honored, as she did all of her life, the artisans’ tradition and their mode of experiential apprenticeship (LangÉtienne, 1988). VOLUME 69 ■ ISSUE 4 ■ CANADIAN JOURNAL OF OCCUPATIONAL THERAPY ■ OCTOBER 2002 197 THIBEAULT occupation out of the therapeutic realm to re-introduce it into daily life, as a health-sustaining measure. Drawing from the teachings of Karlfried Graf Dürckheim, a German psychologist and philosopher acknowledged for his exhaustive works on the nature of true well-being and the therapeutic process, Anne explored occupation’s untapped potential for self-discovery, connectedness, mindfulness, and even wisdom. An avid reader and a most erudite mind, she cross-referenced her observations with the writings of such intellectually imposing figures as Bachelard, Plato, Jung, Master Eckhart, and John Dewey (Lang-Étienne, 1982, 1984a, 1984b, 1990). Towards the end of her life, Anne came to the inescapable conclusion that beyond healing through meaning, occupational therapy’s role was also to promote real maturity and produce unity, inner depth and peace. To achieve such results, however, she understood that occupational therapists needed to work as one community. She was searching for a concept to convey that most peculiar notion of a whole body of professionals evolving as one mind towards unity and wisdom, and having a systemic impact on society in doing so. For lack of a better word, and after much discussion, she and I coined the term collective conscious. As a trained analyst, Anne was well versed in the collective unconscious, and she wanted to make accessible the power and creativity inherent to the phenomenon. She conceived of a profession that would consciously nurture and embody positive, meaningful values to the point of transforming its members and the world around them. Eventually, Anne felt a need to return to a more mainstream career, but couldn’t apply her new-found insights in France where occupational therapy was strictly monitored by the medical profession. She immigrated to Canada and made Montréal her home. Working in private practice, psychiatric facilities and schools, Anne quickly realized she could contribute a great deal to the training of occupational therapists in Canada. She taught for several years at Laval University and founded the Occupational at Therapy Program at the University of Ottawa in 1986. Always grateful for the freedom and the natural splendor she found in her new world, Anne elected to live in rural Ontario where, with her husband, she never ceased to marvel at the geese migrations that each year would grace their Sarsfield land. Together they admired, sketched and breathed the beauty surrounding them. To this day I feel that Anne’s soul took flight, one fall morning, with a flock of Canadian geese, a just and tender tribute for the love she showed for her country of adoption. What did Anne believe in? Healing through meaning To find the meaning of one’s life is to realize one’s immaterial aspirations in the material expression that is the body. Lang-Étienne (1985, p.17) Anne was marginal, to the end. Her ideals for the profession seemed unconventional when she formulated them and they still remain on the fringe of current occupational therapy practice. For Anne, the occupational therapist’s core goal was to heal through meaning. Without meaning, there is no motivation. Without motivation, there is no engagement. Without engagement, there is no lasting healing. Her argument stemmed from years of clinical experience and an in-depth understanding of the human psyche. She had dealt with the unshakable inertia we sometimes face in clients who haven’t discovered or revealed their source of meaning. We all know this listlessness, this indifference that can permeate the therapeutic process and make it abort. Anne’s answer to this roadblock was first to stimulate her clients’ awareness and second, to help them cultivate meaning. She saw in occupation the most fundamental tool for becoming mindful, present and mature, both in illness and in health: "Action in itself does not transform, but it contains the seeds of transformation…Action is redeeming: if our clients are open and aware, it induces in them a process of transformation and regeneration." (LangÉtienne, 1985, p.17). Long before health promotion was in style, Anne adopted the use of selected occupations for the general purposes of well-being and balance. She pulled 198 OCTOBRE 2002 ■ REVUE CANADIENNE D’ERGOTHÉRAPIE ■ NUMÉRO 4 What was Anne’s definition of meaning? A heretic’s voice The religious geniuses of all ages have been distinguished by (a cosmic religious feeling) which knows no dogma and no God conceived in man’s image… Hence it is precisely among the heretics of every age that we find individuals who were filled with the highest kind of religious feeling. Albert Einstein (Sinetar, 2002 p.43) Anne would have no doubt celebrated the publication of Enabling Occupation: An Occupational Therapy Perspective (1997). She would have enjoyed the tone of the book, with its emphasis on the individual’s dignity and worth, and experienced a special kinship with the authors, deeply appreciating their concern for social inclusiveness and meaning. Would she have spoken of spirituality, though? I don’t think so. Anne would have shared Unruh, Versnel and Kerr’s (2001) uneasiness with regards to the word spirituality. For Anne, to frame the universal quest for meaning in spiritual terms would have been an act of ■ VOLUME 69 THIBEAULT willful exclusion. What about Albert Camus, Martin Heidegger and Emmanuel Levinas? Some of the greatest thinkers of the twentieth century, who dismissed the very concept of spirituality, suddenly ostracized because of their adherence to existential philosophy? This, Anne would not have accepted. Despite their absence of faith in spirit, these ground-breaking philosophers all worked on meaning and cut across social classes, cultures and eras. So, in Anne’s eyes, meaning – not spirit – became the most significant golden thread connecting the human race. Deeming the existentialist quest equivalent to that of the religious soul, Anne always maintain that: "To find the meaning of one’s life is to realize one’s immaterial aspirations in the material expression that is the body." (Lang-Étienne, 1985, p.17). She held the possibilities infinite and beyond judgment. It is not that Anne was a religious or anti-religious, quite to the contrary. Raised in the Christian tradition, she maintained close ties with her spiritual roots. But she had also been profoundly influenced by Martin Buber, a brilliant Jewish scholar and philosopher who fled the Nazi regime in 1938, moved to what was then Palestine, and took part in the nascent dialogue between Jews and Palestinians (Mendes-Flohr, 1983). A specialist in comparative theology, Buber clearly distinguished between the dogmatic and mystical streams present within each of the world’s great religions. (Buber, 1958, 1964, 1967, 1996) In his views, the dogmatic aspects constitute the necessary structure for preserving and transmitting a given tradition – the vehicle – while the mystical side generates direct communion with the divine – the destination. He was often quoted for saying that if you put a Jew and a Muslim in the same room, chances are they will fight. But if you put a Kabbalist (a Jew practicing Kabbala, a mystical form of Judaism) and a Sufi (a Muslim practicing Sufism, a mystical form of Islam) in that same room, chances are they will pray together, for they know that they both share the only Ultimate Reality. Buber repeatedly deplored our insistence on structure rather than substance, on dogma rather than spirit. However, little progress has been made since he first opposed intolerance: indeed, many of today’s conflicts still reflect our tragic propensity for confusing vehicle and destination. Dogmatic wars rage on while the sheer memory of a mystical common ground is being obliterated from collective mind, along with any hope of lasting peace. Buber’s writings irreversibly altered Anne’s perspective on spirituality and meaning as she was suddenly thrust outside the familiar boundaries of religious practice into the lived mystical experience. Destabilized, she sought other guides and found Albert Camus, John Fowler, Karlfried Graf Dürckheim and Erik Erikson, who all further reinforced her belief in meaning as the central endeavour of human existence, even in the most secular milieu. She took from Camus a love of nature, rapturous VOLUME 69 ■ ISSUE incarnation and social justice that molded both her personal life and professional orientations. From Fowler, an authority on moral and psycho-spiritual development, she learned of the universalizing of faith, the last step of normal growth where mystical awareness supplants dogma and yields the kind of tolerance so dear to Buber. From Dürckheim and Erikson, she understood the urgency of cultivating greater maturity in a society where healthy models have been nearly eradicated. Maturity in the post-modern civilization is reduced to the functional mastery of our environment: have we succeeded in securing a job, feeding a family, or buying our share of goods? Then, according to Western standards, we have met the social expectations and completed the human agenda. The ideas of generativity, of giving back to life, of bearing witness to wisdom and serenity find few echoes amongst our contemporaries. And yet, the drive to fulfill our natural destiny is etched in our souls: we are meant to evolve towards congruence, unity and radiance. But for lack of proper guidance, we settle for superficiality and thwarted growth, forever seeking wealth and power, forever suppressing a nebulous malaise, the sole remnant of a stifled, dying spirit. What was Anne’s dream? A dissident profession Occupational therapy reveals not only reality in its concrete form, but also one’s inner world and its many facets. And this world, if we know how to decipher it, touches the very core of being, the meaning of life, and all that is essential. Lang-Étienne (1986, p.14) Anne dreamt of a dissident profession that would resist social pressure and challenge commonly held views. She dreamt of a profession dedicated not only to the functional, but also to the essential (Lang-Étienne, 1983). Through focusing more on mindfulness and less on conformity, she hoped for renewed awareness and maturity that would revitalize our collective engagement and restore our ontological interactions with clients, each other and the world. Hers was not a shallow, obdurate position. She acknowledged the primacy of efficiency and cost containment in health care, but refused to limit intervention to the confines of these two criteria. She always moved beyond the quick fix to address issues rooted in the heart. With each one of her clients or students, she strove to create conditions conducive to metanoïa, this inner metamorphosis thought in ancient Greece to be the source of centredness and compassion. For she knew that individual change results in due course in social change. Systemic social action starts with each citizen. The client who, because of us, embraces a healthier, more peaceful life will exert a healthier, more peaceful influence around him. 4 ■ CANADIAN JOURNAL OF OCCUPATIONAL THERAPY ■ OCTOBER 2002 199 THIBEAULT Anne used to liken this maturation process to alchemy and regarded occupation as the best crucible. Since occupation confronts us with matter and clearly delineates our strengths and weaknesses, it has the power to refine self-knowledge and galvanize growth. And because it is our specific tool, Anne saw us as perfectly situated to become models of professional maturity in a system that increasingly neglects humanistic values. Yes, she dreamt of us as a profession that would foster true maturity, complete the natural sequence of development and show concern for social justice. She envisioned the contribution of occupational therapy to socially or environmentally devastated communities with collective healing as our aim. And she yearned to instruct students on how to become good stewards for our world. I will never forget the three questions that resonated like mantras throughout her teachings: "What do you need to do in order to remain centred and compassionate? What are the social consequences of your professional decisions? And what are their environmental consequences?" I still hear them as I measure the gap between Anne’s vision and our reality. Anne would have rebelled against convenience and acted for the greater good. Would there be a better place on earth to try out her ideas than a war zone? What about implementing Anne’s dream in Sierra Leone? First, it came as a flash, but the idea kept growing, almost outside my will. Slowly, it took a life of its own and demanded to be born. In Sierra Leone, our mandate covers three main populations: amputees, child soldiers and young bush wives, girls abducted in their pre-school years and reduced to slavery by rebel troops. Some have also become combatants and all have been repeatedly subjected to rape. Above and beyond their psychological scars, many have also suffered torture and mutilation, their own body perpetually reminding them of the abject conditions they have once known. If Anne’s vision could work here, it could work anywhere. And so it went, with the first program tailored on Anne’s approach initiated in the Spring of 2000. Instead of presenting additional theoretical considerations or a detailed framework, I will illustrate the process with real-life anecdotes drawn from my African experience. Our collective conscious in action I had needed all my tact and skill to secure a meeting with B.D., a local official responsible for many of the young bush wives’ future. When it was granted, I would know my good luck. In a context where resources are exceedingly scarce, competition is fierce and unforgiving. You rarely get a second chance if you start on the wrong foot, so I was determined to make the best of it. The cold stare, as soon as the door opened, stopped me in my tracks: B.D.’s irritation was palpable. Mustering all the persuasiveness I was capable of, I pleaded for access to the girls and explained the program goals. His reply was curt, unbending: "These are only girls, 30,000 of them, all damaged goods, unworthy of help. Next!" I tried to argue, to no avail. The door closed, the battle was lost. Back at the UN headquarters, just below the helipad and in the incessant roar of transport, I just sat and stared at the ocean, aware of the magnitude of defeat. As sometimes happens in those moments, the strangest image popped into my mind. I could see my long dead grandmother telling me: "Rachel, pray to St-Jude, patron of desperate causes." Well, Grandma would have disowned me, because I found myself praying instead to Sue Baptiste and Judith Friedland. The funny thing is, I don’t know Sue and Judith a great deal more than I know St-Jude. Our paths have barely crossed over the years. But the memory of how they had conducted themselves around difficult issues with the Ontario government suddenly surfaced. I remembered how I had observed, from afar, their acumen in negotiations and their strong commitment to their values. For me, they embodied occupational therapy’s highest ethics and I wondered what they would do in my situation. Anne’s dream today : The acid test of Sierra Leone An authentic spirituality does not cater to culture; it calls culture to accountability. Joan Chittister, Order of Saint Benedict (Alternatives for Simple Living, 2001, p.25) Many among you may consider Anne’s dream a utopia. It sounds so far-fetched and unrealistic in our age of Cartesian, evidence-based practice. But let’s not forget that evidence is not only of a quantitative nature; some in fact could never be summed up with figures and numbers and bears names such as courage, generosity and self-sacrifice. Several times a year, my research with a United Nations implementing agency takes me to war zones. From the refugee camps of Lebanon to the orphanages of Sierra Leone, I see unspeakable destruction and despair brought on by greed or fanaticism. In some areas, it feels like standing at the end of time: shapeless mounds of dirt smolder and stink while the remaining vegetation slowly dries up and shrivels in the heat. Rocky, barren chasms now gape where gardens used to be tended, and rivers carry death with the bloated, rotting carcasses floating downstream. In neighbouring villages, starvation and poor sanitation routinely claim lives, a revolting aberration given the planet’s wealth and technology. Every time, Victor Gollancz’s words ring in my ears: "The plain fact is that we are starving people, not deliberately in the sense that we want them to die, but willfully in the sense that we prefer their death to our own inconvenience."(Gollancz, 1946, p.192). 200 OCTOBRE 2002 ■ REVUE CANADIENNE D’ERGOTHÉRAPIE ■ NUMÉRO 4 ■ VOLUME 69 THIBEAULT That thought opened a floodgate. Anne Carswell was next, advocating for women’s rights. Liz Townsend followed, calling for social justice. Louis Trudel, Huguette Picard , Danielle Massicotte were all there persuading me to be true to myself and our deepest beliefs. Geraldine Moore and Suzette Montreuil assured me I had the strength to fight. And my colleagues from the University of Ottawa pledged their unfailing support. It went on until sunset, an unbroken stream of occupational therapists’ voices reaching me all the way from Canada. I don’t know if the therapists whose influence I had evoked felt any stirring, but the following morning we all walked back into B.D.’s office. Their voices steadied mine, their ideals fed mine, their dedication strengthened mine. And guess what? We won! And I say we because at that moment I was keenly aware of a collective victory. I doubt very much that the people who inspired me foresaw that their actions in Canada would eventually change the lives of thousands of African slaves, and yet they did. It was the power of intent, the collective conscious of Anne’s dream. The shaping of our intent and values here triggered more than a ripple effect. With time, it picked up momentum and might, to bring our most cherished principles to life. Had she lived, Anne would have applied our collective conscious to counter ignorance. According to her, the main hurdle to the expansion of occupational therapy lied with ignorance: not only are most people unaware of who we are, but we, ourselves, tend to shy away from vital roles. She was convinced that the values intrinsic to occupational therapy, if expressed more forcefully in the public sphere, could provide appropriate solutions to some pervasive ills. And I would like again to give three examples of how occupational therapists can have an impact at the individual, societal and environmental levels. though chronic depression is a rare occurrence in these parts, PTSD is rampant and understandably so. Several amputees had been forced to perpetrate atrocities prior to being mutilated. More had seen their relatives hacked to death before their own eyes. And we were expecting them to resume daily life as if nothing had happened? The enormity of the oversight was staggering and it brutally highlighted the relevance of our holistic philosophy. As the only rehabilitation professionals with training in physical and mental health, occupational therapists must protect their clients’ well-being when the system fails to meet them in their integrity. The societal cost of ignorance The young medical doctor hired by one of the relief agencies was the typical product of our North American university system: disciplined, logical, competent. Eager to offer the best possible care even in a war zone, he lobbied long and hard to have funds ear-tagged for micro-credit transferred to the purchase of some fairly sophisticated diagnostic equipment. He proudly won his case and set up the $2,500 device under the newest tent. A year passed, that saw it used less than 10 times. Together, we ended up visiting the village for which the money was originally meant. Because of his ill-informed interference, the women who would have been earning a living with their micro-enterprises, supporting up to 250 people with a modest income, were starving. Several children and elderly had already died of diseases associated with malnutrition and lack of clean water. Many others had developed unremitting conditions and a whole community had been condemned to dire poverty. The man was shocked, baffled. He blurted out, obviously shaken, "No one ever told me about the big picture." No, he hadn’t grasped before then that his meager $2500 was in fact an entire village’s life blood. Not once had he asked himself, "what are the larger social consequences of my professional decision?" And I felt that is what we occupational therapists are about, with our faith in social justice: reminding our fellow health care professionals of a picture broader than our immediate disciplines. The individual cost of ignorance "I’ve had it with their laziness! They’re just here to take advantage of us, to squeeze the lemon to the last drop!" The Caucasian health care professional stormed out of the barrack housing the rehabilitation facility. Inside, about 40 amputees, newly fitted with artificial limbs, were sitting on roughly hewn wooden benches, waiting. A few would howl, terrified by apparitions visible only to them. Some would burst out in uncontrollable laughter. But, staring blankly into space, the majority would remain motionless, in a near catatonic state. The health team’s objective was to train the amputees in the use of their prosthetics and there was extreme frustration at the poor collaboration. Nothing seemed to work: be it to threat or bribe, the response was apathy. As an occupational therapist, I quickly realized that what was labeled lack of cooperation by my co-workers was in reality Post Traumatic Shock Disorder (PTSD). Even VOLUME 69 ■ ISSUE The environmental cost of ignorance With the psychosocial healing program well underway, a group of young bush wives was now ready to address vocational opportunities. Surveying their alternatives, traditional or not, they agreed to establish a fish-salting cooperative that would allow them to tap a still unoccupied and lucrative niche. Diligently, they honed their management and technical skills and prepared for the launching of their business. The granting agency, however, favored fish 4 ■ CANADIAN JOURNAL OF OCCUPATIONAL THERAPY ■ OCTOBER 2002 201 THIBEAULT Throughout the healing cycle, FAWE teaches its trainees greater maturity, trust and respect for their human and non-human world. To government and nongovernment agencies, it keeps advocating gender equality and social justice as crucial pillars of a new social order; certainly, long-term peace and stability cannot be achieved without equity and inclusiveness at their core. To stand in Freetown or Bo is to witness the birth of Anne’s dream, alive and well in the heart of Africa. But what about here? smoking over fish salting or drying. Its bureaucrats had analyzed the bush wives’ project through their European lens and concluded that smoked fish would constitute a more popular item. Loans would therefore be issued as soon as the marketing plan would reflect the necessary changes. While Sierra Leone knows no shortage of salt or sun, it suffers major deforestation; consequently, hills around most sizeable communities are bare and women must walk several kilometers to find fire wood. Going along with the granting agency’s wish would have been very easy and unquestionably shortsighted. The only defensible choice was to negotiate the implementation of a sustainable project in line with available resources. Initially, the promotion of sound ecological practices within what was truly a health care program appeared somewhat odd, but as each scenario’s environmental and social consequences were underlined, new understanding arose and the viable fish salting option was selected. What about here? Anne’s dream in our community If Anne were here, she would count on our profession to show a collective will to value balance and maturity in a world that doesn’t. And she would underscore the clinical supervisors’ critical role as the agents of change in occupational therapy. It is no secret that the university system doesn’t lend itself anymore to personalized contacts or attention. It is those of you, generous enough to devote time and energy to the training of students, who are the key to our future. Day in and day out, you observe and guide each one of our therapists in becoming. Through your example and advice, you get to mold the practice of the 21st century. In doing so, Anne would also expect you to rise above dogmatic intolerance and fight ignorance and fanaticism by exposing students to the big picture, those realities that lie beyond our narrow interests. From universities, she would request systematic integration of issues of healthy maturity, social justice and environment in all curriculums. Competent occupational therapists should first be decent human beings and decent citizens. I would like to remind those who doubt that mentalities do change. Several of my older aunts, as young women, were denied the right to vote. Under Canadian law, they were not considered persons. If today a woman were to show up at a polling station and be told: "Sorry, Madam, you can’t vote, for you’re not legally a person," it would trigger a revolution. And yet, this was the fabric of our society, a mere generation ago. As citizens, occupational therapists could accelerate change, casting their vote in support of candidates favorable to sound environmental and social policies. As health care workers, they could wield their professional influence to request from manufacturers recyclable, less polluting products. Finally, in each of us, Anne would like to sense an individual will to pursue growth, become whole, cultivate meaning in our own lives, and thus contribute fully to our collective conscious. Anne’s dream and the women of FAWE The program depicted above is the brainchild of FAWE, an acronym for Forum for African Women Educationalists. These women, retired female educators from across Sierra Leone, constitute a powerful social force. When the war broke out, they were among the few who had the means to emigrate as their national and international connections could have made a quick exodus possible. They chose nonetheless to stay and help rebuild the country, sometimes putting their own lives at risk. Opening shelters, treatment centres and schools, even in rebel-held areas, they created one of the best networks to assist young war victims. Intuitively, they turned to occupation as their medium for intervention. Since the severity of trauma often precludes long verbal interactions, treatment begins with the restructuring of routines through activities of daily living. Very early in the process, other occupations are introduced, following a reflection on what is truly meaningful for each victim. They revisit traditional and not so traditional occupations, marrying trends to suit individual needs and boost self-esteem. In some instances, they even use occupation to restore civil society: when rebel soldiers are demobilized and reintegrate village life, they suddenly find themselves in the presence of their own victims. A communal, constructive occupation, such as the rebuilding of a clinic, becomes the first bridge between the perpetrators and the wounded. Initially, the two groups stay apart, working in silence, paralyzed by shame, fear or anger. Little by little, a dialogue emerges, hesitantly, cautiously, opening the door to the resumption of bearable collective living. 202 OCTOBRE 2002 ■ REVUE CANADIENNE D’ERGOTHÉRAPIE ■ NUMÉRO 4 ■ VOLUME 69 THIBEAULT Cum Spiritu Sancto: Living the moment’s richness with J.S.Bach References Alternatives for Simple Living (2001). Lenten Calendar 2001. Sioux City: Alternatives for Simple Living. Buber, M. (1996). Ecstatic confessions: The heart of mysticism. Ed. Paul Mendes-Flohr. Trans. Esther Cameron. New York: Syracuse University Press, Martin Buber Library. Buber, M. (1967). A believing humanism: My testament 1902-1965. New York: Simon and Shuster. Buber, M. (1964). Between man and man. London: Collins Buber, M. (1958). I and thou. New York: Scribner’s. Gollancz, V.(1946). Our threatened values. London: Victor Gollancz Publisher. Lang-Étienne, A. (1990). L’activité en Amérique du Nord : Évolution vers une science de l’occupation. Journal d’Ergothérapie. Tome 12, No. 2, 48-53. Lang-Étienne, A. (1988). Un des outils de l’apprentissage expérientiel : Le journal intime. Santé mentale au Québec, IX, No. 2, 165-169. Lang-Étienne, A. (1986). L’action et l’adhésion à l’existence. Le Transfert, Vol. 10, No.1, 14. Lang-Étienne, A. (1985). L’art alchimique serait-il un art ergothérapique? Le Transfert, Vol. 9, No.3, 17. Lang-Étienne, A. (1984a). La matière, notre miroir. Le Transfert, Vol. 8, No. 2, 23. Lang-Étienne, A. (1984b). L’habitude et l’attention, ces pôles contraires. Le Transfert, Vol.8, No. 3, 14-15. Lang-Étienne, A. (1983). L’approche globale : Poncif ou réalité. Revue canadienne d’ergothérapie, Vol.50, No.5, 177-181. Lang-Étienne, A. (1982a). Le jeu et ses recommencements dans la vie adulte. Le Transfert, Vol. 6. No. 3, 4-8. Mendes-Flohr, P. (1983). A land of two peoples: Martin Buber on Jews and Arabs. New York: Oxford University Press. Schweitzer, A.(2002). University of Washington McNair Program Mentor Guidelines. Web site: //depts.washington.edu/ uwmcnair/mentor.htm. Sinetar, M. (2002). Don’t call me old, I’m just awakening. Mahwah, New Jersey: Paulist Press. Unruh, A.M., Versnel, J., & Kerr, N. (2002). Spirituality unplugged: A review of commonalities and contentions and a resolution. Canadian Journal of Occupational Therapy, Vol.69, 5-19. I have now reached the end of my words, and there is still so much to say. I don’t want to let go of the page: it feels too much like letting go, for a second time, of a warm, almost motherly presence that was irremediably taken away in the fall of 1991. To find comfort, I nestle by Anne’s passion and presence, hidden in her prose: "To live is to be open to each moment’s richness, and thus to our own richness. We interrupt our superficial agitation … to delve into existence." (Lang-Étienne, 1983, p.179) Delving into existence will be my tribute to Anne, the only fitting one. In a few minutes, I will play Bach’s Mass in B-Minor, specifically the Cum Sancto Spiritu, Anne’s favorite, and let the music reverberate through the late afternoon. It will spill over into the garden, fill the already fragrant air, enhance the vibrant purple hues of the Japanese irises. And my resident cardinal, always exalting life, will leave its nest to sing its own homage to the legacy of my mentor and friend, Anne Lang-Étienne. Sometimes our light goes out but is blown into flame by another human being. Each of us owes deepest thanks to those who have rekindled this light. Albert Schweitzer Anne Lang-Étienne 1932-1991 Acknowledgement The author wishes to thank the World Rehabilitation Fund for its ongoing support and commitment to the FAWE project. Précis bien gardé à la barrière des langues où à la nature nettement visionnaire des propos de Anne Lang-Étienne, on est saisi, encore aujourd’hui, devant leur pertinence. Rachel Thibeault, fidèle disciple de cette pédagogue incomparable, nous dresse un portrait saisissant et nous entraîne aux confins des réflexions de Anne. D’origine française, Anne s’est heurtée très tôt aux réalités d’un monde tourmenté par la guerre, l’injustice sociale et les luttes pour le pouvoir. En choisissant l’ergothérapie comme véhicule de ses convictions, Anne Lang-Étienne a d’abord été déroutée par la rigidité des milieux hospitaliers européens et, après quelques années de pratique en psychiatrie, elle a senti le besoin de se retirer Apologie d’une profession dissidente : Le rêve de Anne Lang-Étienne (1932-1991) Les pensées des grands esprits de ce monde ne sont souvent réalisées et comprises que bien longtemps après leur mort. Disparue en 1991, Anne Lang-Étienne compte parmi les plus grandes visionnaires de notre profession; pourtant, de son vivant, peu de membres de la communauté ergothérapique ont eu le privilège de découvrir ses écrits et sa vision. Peu importe que l’on puisse attribuer ce secret VOLUME 69 ■ ISSUE 4 ■ CANADIAN JOURNAL OF OCCUPATIONAL THERAPY ■ OCTOBER 2002 203 THIBEAULT pour poursuivre sa quête de sens personnelle, à travers la poterie. Elle fait un retour dans la profession après sa découverte de l’Amérique, qu’elle considère plus ouverte que l’Europe. Après avoir œuvré en clinique privée, dans des établissements psychiatriques et dans les écoles, Anne découvre sa vocation d’enseignante, qu’elle exerce d’abord à l’Université Laval, puis, à l’Université d’Ottawa, où elle fonde le programme d’ergothérapie. Anne Lang-Étienne croyait que pour trouver un sens à sa vie, il faut réaliser ses aspirations immatérielles à travers l’expression matérielle du corps. Pour elle, le but premier de l’ergothérapie était la guérison par la quête et l’attribution de sens. Car, de son avis, il n’y a pas de motivation possible si notre vie est dépourvue de sens. Sans motivation, aucun engagement n’est possible et sans engagement, aucune guérison véritable ne survient. Devant l’inertie de certains clients qui n’ont pas découvert le sens de leur vie, Anne nous proposait d’éveiller leur conscience puis de les aider à ‘cultiver du sens’. Elle voyait dans l’occupation l’outil le plus fondamental pour aider le client à faire preuve de réflexion, à vivre le moment présent et à atteindre la maturité, qu’il soit victime d’une maladie ou qu’il soit en santé. Selon Anne, l’action en elle-même ne transforme pas la personne, mais elle contient les clés de la transformation. Ainsi, l’action a un pouvoir de transformation et de régénération seulement si les clients sont réceptifs et conscients. Vers la fin de sa vie, Anne en est venue à la conclusion que par-delà la guérison à travers la quête de sens, le rôle de l’ergothérapie était de promouvoir la maturité véritable et de créer l’unité, la richesse intérieure et la paix. Pour ce faire, Anne croyait que les ergothérapeutes devaient former une communauté unie. Le concept de la conscience collective, soit un corps de professionnels évoluant avec une vision commune vers l’unité et la sagesse et exerçant une influence systémique sur la société, s’est alors précisé dans son esprit. Anne rêvait d’une profession qui nourrirait et représenterait des valeurs positives qui entraîneraient éventuellement une transformation chez ses membres et dans leur entourage. Anne aurait sans aucun doute accueilli avec enthousiasme la publication de Promouvoir l’occupation, tant par l’accent mis sur le respect de la dignité de la personne que par la préoccupation des auteurs pour l’intégration sociale et la quête de sens. Par contre , elle aurait eu des réserves quant à l’emploi du terme spiritualité, car, à son avis, le fait de définir la quête de sens universelle en termes spirituels aurait été un acte d’exclusion volontaire. Pour Anne, le sens, et non l’esprit, est devenu le lien le plus important entre les êtres humains. Le rêve de Anne était de voir s’affirmer une profession différente, qui résisterait aux pressions sociales et qui remettrait en question les perspectives courantes. Elle rêvait d’une profession se consacrant non pas uniquement au ‘fonctionnel’, mais également à ‘l’essentiel’. Bien qu’elle reconnaissait la priorité de l’efficacité et de la réduction des coûts des soins de santé, elle refusait de limiter l’intervention aux frontières de ces deux critères. Elle était persuadée 204 OCTOBRE 2002 ■ REVUE CANADIENNE D’ERGOTHÉRAPIE ■ NUMÉRO 4 que le changement individuel entraîne, au fil du temps, un changement social. Anne comparait la maturation de l’individu à l’alchimie et elle considérait l’occupation comme le meilleur creuset. Comme l’occupation nous confronte à la matière et qu’elle délimite clairement nos forces et nos faiblesses, elle a le pouvoir de raffiner nos connaissances et de galvaniser notre croissance. Et, comme il s’agit de notre outil de prédilection, Anne croyait que les ergothérapeutes pouvaient devenir des modèles de maturité professionnelle dans un système où les valeurs humaines sont souvent mises à l’écart. Elle avait le sentiment profond que l’ergothérapie pouvait secourir des communautés dévastées tant au plan social qu’au plan environnemental, si l’intervention était axée sur la guérison collective. Même si plusieurs pourraient considérer le rêve de Anne comme une utopie, parce qu’il semble si éloigné de la pratique centrée sur l’évidence scientifique, il ne faut pas perdre de vue que les données probantes ne sont pas toutes de nature quantitative; certaines portent en effet le nom de générosité, courage et don de soi. Ce rêve s’est matérialisé en terre de guerre en Sierra Leone, au printemps 2000, grâce à la persévérance de Rachel Thibeault, qui a mis en action les principes de Anne. En puisant à même la conscience collective en ergothérapie, Rachel est parvenue à convaincre les autorités africaines de mettre en œuvre un programme destiné aux femmes victimes de la guerre. Ce programme est une idée originale de FAWE (Forum for African Woman Educationalists), fondé par des enseignantes à la retraite de Sierra Leone. Tout comme les ergothérapeutes, elles ont choisi l’occupation comme modalité d’intervention, en basant la réadaptation sur la restructuration des routines par les activités de la vie quotidienne et par l’introduction progressive d’occupations significatives pour chaque victime. Parfois, la réadaptation prend la forme d’une restauration de la société civile, où les victimes et les assaillants se retrouvent face à face et doivent conjuguer leurs efforts pour reconstruire une vie collective supportable. Le rêve de Anne est donc bien vivant, au cœur de l’Afrique. Mais comment peut-il se réaliser ici, dans notre propre communauté? Si elle était encore avec nous, Anne soulignerait l’importance d’éveiller la conscience des étudiants en ergothérapie en les exposant à la réalité, afin qu’ils puissent s’élever au-dessus de l’intolérance dogmatique et lutter contre l’ignorance et le fanatisme; elle exigerait l’intégration systématique de la maturité, de la justice sociale et des questions environnementales dans tous les programmes d’études; elle nous rappellerait qu’un ergothérapeute compétent est avant tout un bon citoyen, respectueux de l’environnement et des autres. En tant qu’individus, elle nous inviterait à poursuivre notre croissance personnelle et à cultiver du sens dans notre vie personnelle afin d’enrichir notre conscience collective. Par-dessus tout, Anne Lang-Étienne nous convierait à suivre la voie qu’elle s’était tracée, à interrompre notre agitation superficielle pour plonger dans l’existence et vivre intensément toute la richesse du moment présent. ■ VOLUME 69