Bibliographie des textes utilisés pour la boite à outil de la

Bibliographie des textes utilisés pour la boite à
outil de la communauté de pratique : La vie et les
relations amoureuses.
Mahault Albarracin
1. Ancet, P. (2008). Le corps vécu et l’expérience du handicap. ALTER-European Journal of
Disability Research/Revue Européenne de Recherche sur le Handicap, 2(2), 95-108. 2. Black, K. (2005). Disability and sexuality holistic care for adolescents: Nurses need to overcome
their reluctance to address sexuality issues if young people with special needs are to receive
holistic services, as Karen Black discovered.Paediatric Care, 17(5), 34-37. 3. Beckett, C., & Wrighton, E. (2000). 'What Matters to Me is not What You're Talking About'Maintaining the Social Model of Disability in'Public and Private'Negotiations. Disability &
Society, 15(7), 991-999. 4. Benedict, R. H., Wahlig, E., Bakshi, R., Fishman, I., Munschauer, F., Zivadinov, R., & WeinstockGuttman, B. (2005). Predicting quality of life in multiple sclerosis: accounting for physical
disability, fatigue, cognition, mood disorder, personality, and behavior change. Journal of the
neurological sciences, 231(1), 29-34. 5. Bonnie, S. (2012). Sex & disability: politics, identity and access. Disability & Society, 27(1), 145147. 6. Bray, P., Bundy, A. C., Ryan, M. M., North, K. N., & Everett, A. (2010). Health-related quality of
life in boys with duchenne muscular dystrophy: agreement between parents and their
sons. Journal of child neurology. 7. Brekke, M., Hjortdahl, P., & Kvien, T. K. (2002). Severity of musculoskeletal pain: relations to
socioeconomic inequality. Social science & medicine, 54(2), 221-228. 8. Browne, J., & Russell, S. (2005). My home, your workplace: people with physical disability
negotiate their sexual health without crossing professional boundaries. Disability & Society, 20(4),
375-388. 9. Chambon, X. (2011). Témoignages sur la sexualité de la personne hémiplégique. Sexologies,
20(2), 135-139. 10. Chossy, J. F. (2011). Passer de la prise en charge à la prise en compte. 11. Cole, T. M., & Cole, S. S. (1976). The handicapped and sexual health. Siecus Report, 4(5), 1-2. 12. Cotton, S. M., Voudouris, N. J., & Greenwood, K. M. (2005). Association between intellectual
functioning and age in children and young adults with Duchenne muscular dystrophy: further
results from a meta-analysis.Developmental Medicine & Child Neurology, 47(04), 257-265. 13. Dammann, O., & O'Shea, T. M. (2007). Happiness reconsidered in children with cerebral
palsy. The Lancet, 369(9580), 2137-2138. 14. Darke, J., Bushby, K., Couteur, A. L., & McConachie, H. (2006). Survey of behaviour problems in
children with neuromuscular diseases. European Journal of Paediatric Neurology, 10(3), 129-134. 15. Deal, M. (2003). Disabled people's attitudes toward other impairment groups: a hierarchy of
impairments. Disability & Society, 18(7), 897-910. 16. Dickinson, H. O., Parkinson, K. N., Ravens-Sieberer, U., Schirripa, G., Thyen, U., Arnaud, C., ...
& Colver, A. F. (2007). Self-reported quality of life of 8–12-year-old children with cerebral palsy: a
cross-sectional European study. The Lancet, 369(9580), 2171-2178. 17. Dupras, A. (2000). Sexualité et handicap: de l'angélisation à la sexualisation de la personne
handicapée physique. Nouvelles pratiques sociales, 13(1), 173-189. 18. Dyer, K., Aubeeluck, A., Yates, N. L., & Nair, R. D. (2014). A Multiple Timepoint Pre-post
Evaluation of a ‘Sexual Respect’DVD to Improve Competence in Discussing Sex with Patients
with Disability. Sexuality and Disability, 1-13. 19. Earle, S. (1999). Facilitated sex and the concept of sexual need: disabled students and their
personal assistants. Disability & Society, 14(3), 309-323. 20. Galvin, R. (2006). A genealogy of the disabled identity in relation to work and sexuality. Disability
& Society, 21(5), 499-512. 21. Gamel, C., Hengeveld, M. W., Davis, B., & Van Der Tweel, I. (1995). Factors that influence the
provision of sexual health care by Dutch cancer nurses.International journal of nursing
studies, 32(3), 301-314. 22. Gott, M., Galena, E., Hinchliff, S., & Elford, H. (2004). “Opening a can of worms”: GP and practice
nurse barriers to talking about sexual health in primary care. Family Practice, 21(5), 528-536. 23. Green, S., Davis, C., Karshmer, E., Marsh, P., & Straight, B. (2005). Living stigma: The impact of
labeling, stereotyping, separation, status loss, and discrimination in the lives of individuals with
disabilities and their families.Sociological Inquiry, 75(2), 197-215. 24. Guthrie, C. (1999). Nurses' perceptions of sexuality relating to patient care.Journal of clinical
nursing, 8(3), 313-321. 25. Haboubi, N. H. J., & Lincoln, N. (2003). Views of health professionals on discussing sexual issues
with patients. Disability & Rehabilitation, 25(6), 291-296. 26. Hamilton, C. A. (2009). ‘Now I’d like to sleep with Rachael’–researching sexuality support in a
service agency group home. Disability & Society, 24(3), 303-315. 27. Hanna, W. J., & Rogovsky, B. (1991). Women with disabilities: Two handicaps plus. Disability,
Handicap & Society, 6(1), 49-63. 28. Hendey, N., & Pascall, G. (1998). Independent living: gender, violence and the threat of
violence. Disability & Society, 13(3), 415-427. 29. Higgins, A., Barker, P., & Begley, C. M. (2005). Neuroleptic medication and sexuality: the
forgotten aspect of education and care. Journal of psychiatric and mental health nursing, 12(4),
439-446. 30. Hintermair, M. (2006). Parental resources, parental stress, and socioemotional development of
deaf and hard of hearing children. Journal of deaf studies and deaf education, 11(4), 493-513. 31. Ho, T. M., & Fernández, M. (2006). Patient's sexual health: do we care enough?. Journal of renal
care, 32(4), 183-186. 32. Hollomotz, A. (2013). Exploiting the Fifty Shades of Grey craze for the disability and sexual rights
agenda. Disability & Society, 28(3), 418-422. 33. Hwang, K., Johnston, M., & Smith, J. K. (2007). Romantic attachment in individuals with physical
disabilities. Rehabilitation Psychology, 52(2), 184. 34. Ide, M. (2004). Sexuality in persons with limb amputation: a meaningful discussion of reintegration. Disability & Rehabilitation, 26(14-15), 939-943. 35. Inckle, K. (2014). A lame argument: profoundly disabled embodiment as critical gender
politics. Disability & Society, 29(3), 388-401. 36. Jaarsma, T., Strömberg, A., Fridlund, B., De Geest, S., Mårtensson, J., Moons, P., ... &
Thompson, D. R. (2010). Sexual counselling of cardiac patients: nurses' perception of practice,
responsibility and confidence. European Journal of Cardiovascular Nursing, 9(1), 24-29. 37. Kallianes, V., & Rubenfeld, P. (1997). Disabled women and reproductive rights.Disability &
Society, 12(2), 203-222. 38. Kedde, H., van de Wiel, H., Schultz, W. W., Vanwesenbeeck, I., & Bender, J. (2012). Sexual
health problems and associated help-seeking behavior of people with physical disabilities and
chronic diseases. Journal of sex & marital therapy, 38(1), 63-78. 39. Kim, S., Kang, H. S., & Kim, J. H. (2011). A sexual health care attitude scale for nurses:
development and psychometric evaluation. International journal of nursing studies, 48(12), 15221532. 40. Kotronoulas, G., Papadopoulou, C., & Patiraki, E. (2009). Nurses’ knowledge, attitudes, and
practices regarding provision of sexual health care in patients with cancer: critical review of the
evidence. Supportive care in cancer, 17(5), 479-501. 41. Lavin, M., & Hyde, A. (2006). Sexuality as an aspect of nursing care for women receiving
chemotherapy for breast cancer in an Irish context. European journal of oncology nursing, 10(1),
10-18. 42. Li, C. M. N., & Yau, M. K. S. (2006). Sexual issues and concerns: tales of Chinese women with
spinal cord impairments. Sexuality and Disability, 24(1), 1-26. 43. Liddiard, K. (2014). The work of disabled identities in intimate relationships.Disability &
Society, 29(1), 115-128. 44. Magnan, M. E., Reynolds, K. E., & Galvin, E. A. (2005). Barriers to addressing patient sexuality in
nursing practice. Medsurg Nursing, 14(5), 282. 45. Mercier, M. (2006). Différencier les handicaps en matière de vie affective et sexuelle, un enjeu de
politique de santé. Reliance, (4), 39-42. 46. Moulin, P. (2007). La construction de la sexualité chez les professionnels de santé et du travail
social ou la normalisation des conduites profanes. Nouvelle revue de psychosociologie, (2), 5988. 47. Neville‐Jan∗, A. (2004). Selling your soul to the devil: an autoethnography of pain, pleasure and
the quest for a child. Disability & Society, 19(2), 113-127. 48. Nixon, J. (2009). Domestic violence and women with disabilities: Locating the issue on the
periphery of social movements. Disability & Society, 24(1), 77-89. 49. Nuss, M. (2009). Enjeux politiques et juridiques de l'accompagnement sexuel.Reliance, (3), 2632. 50. Parrott, Y., & Esmail, S. (2010). Burn survivors' perceptions regarding relevant sexual education
strategies. Health Education, 110(2), 84-97. 51. Pearson, V., & Klook, A. (1989). Sexual behaviour following paraplegia: an exploratory study in
Hong Kong. Disability, Handicap & Society, 4(3), 285-295. 52. Picavet, H. S. J., & Hoeymans, N. (2002). Physical disability in The Netherlands: prevalence, risk
groups and time trends. Public health, 116(4), 231-237. 53. Ojanlatva, A. (2006). Miriam Kaufman, Cory Silverberg, and Fran Odette (eds) The Ultimate
Guide to Sex and Disability. Sexuality and Disability, 24(2), 121-123. 54. Omansky Gordon, B., & Rosenblum, K. E. (2001). Bringing disability into the sociological frame: A
comparison of disability with race, sex, and sexual orientation statuses. Disability &
Society, 16(1), 5-19. 55. OPSOMER, R., MERCIER, M., & KIEKENS, C. Sexualité et handicap physique: À propos du IXe
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society, 23(6), 585-597. 57. Roach, S. M. (2004). Sexual behaviour of nursing home residents: staff perceptions and
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