November 18, 2016 Muscular Dystrophy News Weekly Digest You

November 18, 2016
Muscular Dystrophy News Weekly Digest
You will find these articles in this week’s digest:
Women Assessed Before 2003 for Duchenne MD Carrier Risk Should Be Reassessed, Study Suggests
Scoliosis Surgery May Improve DMD Patient Lives Despite Risk of Complications
Elevated Protein Improves Muscle, Pulmonary Dysfunction in Duchenne Muscular Dystrophy Mouse Models
Lack of Dystrophin May Lead to Heart Failure in Duchenne MD Patients, Study Finds
Government of Canada - Consulting with Canadians on planned accessibility legislation
Canadians can participate in the online component of this national consultation process and share their ideas on how to
improve accessibility and the inclusion of Canadians with disabilities. For more information visit
http://www.esdc.gc.ca/en/consultations/disability/legislation/index.page#h2.35
Here is a media release from the Council of Canadians with Disabilities “ Regulations Are Necessary to Increase the
Accessibility of Passenger Transportation”
Don’t miss your opportunity to voice your ideas and concerns!
There are two more In-person consultations scheduled in our region:
Thursday, December 8th from 4:00 pm to 7:30 pm at the Charlottetown Murphy’s Community Centre, 200 Richmond St
in Charlottetown, PE.
Friday, December 9th from 4:00 pm to 7:30 pm at the Halifax Canadian Museum of Immigration at Pier 21, Room
Kenneth C. Rowe Hall, 1055 Marginal Rd in Halifax, NS.
Or you can participate in the online component of this national consultation process and share their ideas on how to
improve accessibility and the inclusion of Canadians with disabilities. For more information visit
http://www.esdc.gc.ca/en/consultations/disability/legislation/index.page#h2.35
Bulletin REEI (Régime enregistré d’épargne- invalidité) / RDSP Newsletter (Registered Disability Savings Plan)
Please find attached the Canada Disability Savings Program (CDSP) newsletter. Veuillez trouvez ci-joint le bulletin du
Programme canadien pour l’épargne-invalidité (PCEI).
To find out more about the RDSP, visit www.hrsdc.gc.ca/disabilitysavings or call 1 800 O-Canada (1 800 622-6232). TTY:
1 800 926-9105.
Pour en savoir plus visitez le site www.rhdcc.gc.ca/epargneinvalidite ou composez le 1 800 O-Canada (1 800 622-6232)
ou le 1 800 926-9105 (ATS).
Moncton - Sledge Hockey Open Ice Sessions
You’re invited to participate in community open ice sessions for sledge hockey in Moncton. These sessions are an
introduction to sledge hockey, the equipment, and basic skills. Community open ice sessions are open to anyone that
wants to come out and try a sledge! They are held on most Sundays, contact Brad Mundle at 1-506-382-6642 or email
[email protected]
Fredericton – Powerchair Soccer
Please find attached posters for powerchair soccer practices hosted at the Multicultural Association of Fredericton every
Monday, Tuesday and Friday. For more information contact [email protected]
Fundy Chapter
The next chapter meeting will be held on Saturday, November 19th at Loch Lomond Village, Second floor, at 1 p.m.
Children's Gala in Support of Muscular Dystrophy Canada –
Quispamsis NB
Just in time for the holidays, a magical winter wonderland awaits with
Elsa, Anna and Kristoff, Sunday, November 27th, from 2pm - 4:30pm
for ages 3+ at the Quality Inn and Suites Amsterdam, 114 Millennium
Drive, Quispamsis.
For more information or if you are interested in volunteering at the event contact Elizabeth Vicidomini at
[email protected] or check out their facebook page at
https://www.facebook.com/events/167662223677061/?active_tab=highlights
Central NB Chapter - Christmas Party
The chapter will be holding a family Christmas dinner at the New Maryland Centre on Friday,
November 25th starting at 5 p.m. All are welcome please RSVP Richard at
[email protected] or call the office at 506-450-6322.
Halifax Chapter – Christmas Party
The chapter invites you & yours to their annual Christmas party at the Spryfield Bowlarama at
16th Dentith Road on Saturday, December 3 from 2 -5 p.m. RSVP Tracey at 902-429-6322
x4104 by November 24th.
South Eastern Mighty Drivers Chapter – Annual Bowling Party Annuel
The chapter invites everyone to their annual Bowling party at the Dieppe Bowlarama on
Sunday, December 4th, from 1 to 4p.m. Pizza and chicken wings, veggie tray and candy
bar for a snack are on the menu. For more information contact Marlene
[email protected]
La section locale vous invite a leur "Bowling Party" annuel qui aura lieu le dimanche , 4 décembre au Dieppe Bowlarama
de 13:00 h - 16:00 h . Venez en grand nombre. Nous avons de la pizza, ailes de poulet, crudités et "Bar" de bonbon.
Contactez Marlene pour plus d’information au [email protected]
Atlantic Fall Raffle - Win a Trip to Iceland!!
Iceland isn’t just a destination, it’s an adventure set in a country of
sharp contrasts. A place where fire and ice co-exist. Where dark
winters are offset by the summer’s midnight sun. A country where
insular existence has spurred a rich and vibrant culture. Draw date is
December 9!
Take a chance and contact [email protected] or phone 1-800884-6322. **Tickets are going fast so get yours before they run
out!**
For more information visit http://www.muscle.ca/events/atlantic-fallraffle/
Holiday Ornament Campaign
The 2016 ornaments are here! Check with your local chapter to purchase yours today
for only $12
or order them online for $16 (includes shipping and handling fee).
https://muscle.akaraisin.com/common/Store/Store.aspx?seid=11525&mid=27
Do you know Canadian landmarks? Use your knowledge and enter the
Moose on the Loose contest for your chance to WIN one of five
ornaments http://ow.ly/1tJC305urC1