euthanasia debate
Transcription
euthanasia debate
Marta SPRANZI Associate Professor in History, Philosophy and Ethics of Science at the University of Versailles StQuentin-en-Yvelines (UVSQ), France. Clinical ethics consultant at the Center for Clinical Ethics (Cochin hospital, Paris, France). CURRICULUM VITAE Family name: SPRANZI First name: Marta Date and place of birth: May 27th, 1960 in Milan (Italy) Nationality: French, Italian Personal address: 33, rue Croulebarbe, 75013 Paris Telephone: +33 1 42 17 03 80 Mobile phone: +33 6 61 52 95 05 e-mail: [email protected] Professional address: University of Versailles, 45, avenue des Etats-Unis, 78000 Versailles Education 1997 - PhD in History and Philosophy of Science at the University of Pittsburgh (USA), directed by Dr. Peter Machamer. Title of the thesis: “The tradition of Aristotle’s Topics and Galileo’s Dialogue on the two chief world systems : dialectic, dialogue and demonstration ». Other members of the jury : Prof. James Lennox, Prof. Merrilee Salmon et Prof. John Lyne. 1999 – Master’s degree in Medical Ethics, University of Paris 12, Créteil. Title of the thesis : "Medical interpreting, patients’ rights and the ethics of communication 1992 – Master’s degree in History and civilization at the « Ecole des Hautes Etudes en Sciences Sociales ». Title of the thesis : “Traditions and revolutions in the 17th century” 1989 - Master's degree in History and Philosophy of Science at the University of Pittsburgh (USA) 1985 – Master’s in Philosophy ("Laurea") at the University of Milan (Italy). Title of the thesis: "Leibniz and Berkeley: the notion of relative space and the critique of absolute space » (Grade : 110/110 cum laude). University positions Since 2000 (main appointment) – Associate professor in History, Philosophy and Ethics of Science at the University of Versailles St-Quentin-en-Yvelines (UVSQ), France. Since September 2005 – Part-time position at the Center for Clinical Ethics (Cochin Hospital, Paris) 1998-2000 – Teaching assistant in Philosophy (University of Paris Ouest-Nanterre) Marta Spranzi - CV : mise à jour du 15/09/16, p. 2 1995-1998 – Teaching assistant in History and Philosophy of Science (University of Pittsburgh, USA) Teaching experience University of Versailles St-Quentin-en-Yvelines (UVSQ)– courses in Philosophy of science, Medical ethics and Science and Society for undergraduate students in the sciences and in the medical school. Center for Clinical Ethics (Cochin Hospital) – Co-director (with Dr. Nicolas Foureur) of the 2-year clinical ethics program Participates in several University programs dealing with clinical ethics, healthcare in a diverse cultural setting, the ethics of community interpreting, the ethics of neonatology and palliative care (University of Paris Descartes) Institutional affiliations Since 2015 – Member of the « Printemps » Research Center, UMR 8085 (UVSQ) September 2007-2013 –Member of the CERSES Research Center (“Centre de recherche Sens, Ethique et Société”), UMR 8137 CNRS-University of Paris Descartes 2004-2010 – Member of the National University Council (“Conseil National des Universités”), 72nd department (Epistemology, history of science and technology). 2000- 2007 – Member of the Cavaillès Center (Ecole Normale Supérieure). Since 2005 Associate member of the Institute for the History of Science and techniques (IHPST, UMR CNRS – University of Paris Sorbonne). 2002-2004 – Member of the Ethics Committee of the Eating disorders regional network. Awards 2000 – The Maurice Rapin Foundation Award in medical ethics : "Community interpreting, patients’ rights and the ethics of communication » 1994 – “Apple for the teacher award” (University of Pittsburgh, USA) Research responsibilities April 2014 – Member of the program committee for the ICCEC14 international conference on « The patient’s voice » (University of Paris Descartes). 2009-2010 – CERSES, University of Paris Descartes. Organization of the annual lecture series on Empirical approaches to ethics. September 2-8, 2012 – Member of the organizing committee teacher at the thematic international school on Clinical ethics support services (CESS) (with Véronique Fournier (Cochin Hospital, Paris), 2 Marta Spranzi - CV : mise à jour du 15/09/16, p. 3 Bert Molewijk (University of Amsterdam), Renzo Pegoraro (University of Padoua), at Borca di Cadore (Italy) Since 2010 : Participation to several clinical ethics research projects conducted by the Center for Clinical Ethics (Cochin Hospital, Paris) : « How people over 75 value advance directives » « WAHN : a comparative perspective in several medical specialties » « Relational difficulties between nurses, proxies and patients in long term geriatric care units» June 20th, 2003 – ENS, Paris : organization of a workshop on teaching humanities in science graduate programs. 1999-2001 - Organization of a seminar at the Collège International de Philosophie, Paris (with Philippe Hamou) on The epistemology of invention in the 16th century. Languages Fluent (written and spoken): English, Italian and French Good knowledge of German and Latin Some knowledge of Hebrew and Greek PUBLICATIONS Books The epistemology of empirical ethics (in preparation) The art of dialectic between dialogue and rhetoric : the Aristotelian tradition, Amsterdam, John Benjamins, 2011, 239 pages. Le "Dialogue sur les deux grands systèmes du monde" de Galilée: dialectique, rhétorique et démonstration, Paris, PUF, 2004. Galilée, Lettre à Christine de Lorraine et autres écrits coperniciens, translation, commentary and introduction (with Philippe Hamou), Paris, Le Livre de Poche, 2004. Articles in peer reviewed scientific journals (With Véronique Fournier), “The near-failure of advance directives: why they should not be abandoned altogether, but their role radically reconsidered”, Medicine, Health Care and Philosophy, to appear, 2016 “Professionalizing the practice of clinical ethics consultation: Problems and perspectives”, Bioethica forum, to appear, 2016 (With Véronique Fournier, Laurence Brunet and Nicolas Foureur) « The ‘commitment model’ for clinical ethics consultations : society’s involvement in the solution of individual cases », The journal of clinical ethics, 2015, 26(4), 286-296. 3 Marta Spranzi - CV : mise à jour du 15/09/16, p. 4 (With Laurence Brunet) “The French bioethics public consultation and the anonymity doctrine: Empirical ethics and normative assumptions”, Monash Bioethics Review, 2015, 33(1), 18-28 (With Laurence Brunet) “Personal identity as a form of freedom”, The Hastings Center Report, September-October 2004, 3-4 “Is there a difference between passive and active euthanasia?”, Books and ideas, 2014 (http://www.booksandideas.net/Is-There-a-Difference-Between.html) “Décider et faire: le ‘savoir-comment-faire’ entre sagesse pratique, habilité et éthique du care”, Implications philosophiques, numéro spécial consacré à “L’éthique dans tous les états”, 2013 (http://www.implications-philosophiques.org/actualite/une/decider-et-faire-1/ et http://www.implications-philosophiques.org/actualite/une/decider-et-faire-1/) “The French euthanasia debate : exception and solidarity”, The Cambridge Quarterly of Healthcare Ethics, 22, 2013, 1-9 "Clinical ethics and values : how do norms evolve from practice ?" The journal of Medicine, healthcare and philosophy , 16/1, 93-103, 2013 "The normative relevance of cases: Rhetoric and empirical ethics", The Cambridge Quarterly of Healthcare Ethics, vol. 21/4, 2012, pp. 481-492 (With Véronique Fournier), "L'autonomie en question: pratique éthique et enjeux politiques", Raison publique, vol. 5, fall 2011, pp. 217-242. “Galileo and the mountains of the moon : analogical reasoning, models and metaphors in scientific discovery”, Journal of cognition and culture, (special issue edited by Christophe Heintz on “Studies in cognitive anthropology of science”), 4, 2004, pp. 451-484. “Galileo’s Dialogue on the two chief world systems: rhetoric and dialogue”, Archives internationals d’histoire des sciences, vol. 55, 2005, pp. 97-114 (special issue edited by F. Hallyn, La rhétorique des textes scientifiques au XVIIe siècle). “Rhétorique, dialectique et probabilité au XVIe siècle”, La revue de Synthèse, 4e série, n.2-3-4, AprilDecember 2001, pp. 297-317. "Interprétariat, droits du malade et éthique de la communication", in : C. Byk (ed.), La bioéthique : un langage pour mieux se comprendre, Paris, éditions ESKA/Lacassagne, 2000, pp. 141-168. "Dialectic, dialogue and controversy: the case of Galileo", Science in context, 11(2), 1998, pp.181-203 (special issue on scientific controversies edited by Marcelo Dascal et Gideon Freudenthal). "Le récit comme forme d'explication: science et histoire", Littérature (edited by Jacques Neefs et Claudine Cohen), 109, 1998, pp.46-58. "Dialogue as a 'road to truth': a Renaissance view", in: Dialoganalyse VI, 1st part, Tübingen, Max Niemeyer Verlag, 1998, pp. 85-90. Book chapters 4 Marta Spranzi - CV : mise à jour du 15/09/16, p. 5 « Professional integrity », to appear in : Encyclopedia of Global Bioethics, edited by Henk ten Have, Springer, 2016 « La place de l’interprète dans la relation médicale : éthique médicale et éthique de l’interprète », to appear in: E. Navarro (ed.) Migration et Interprétation-médiation Représentations, enjeux méthodologiques et conceptuels, Michel Houdiard Éditeur "The nature and purpose of Aristotelian dialectic revisited: argumentation theory, scientific controversies and epistemology", in: Frans Van Eemeren and Bart Garssen (eds.), Topical themes, Springer Verlag, 2012, pp. 163-179. "Humanité et maltraitance ordinaire: leçons de quelques lettres de plaintes de patients hospitalisés", in: Qu'est-ce qu'un bon patient? Qu'est-ce qu'un bon médecin? , ed. Claire Crignon and Marie Gaille, Seli Arslan, 2010, pp. 284-299. With Gloria Origgi, "La construction de la confiance dans l'entretien médical", in : Th. Martin et P.-Y. Quiviger (eds.), Action médicale et confiance, Besançon, Presses Universitaires de Franche-Comté, coll. Annales Littéraires de l'Université de Franche-Comté, série Agon, 2007. “Le traité du dialogue de Carlo Sigonio et la dialectique d’Aristote”, in : P. Guérin (ed.) Le dialogue. Ou les enjeux d’une forme d’écriture, Presses Universitaires de Rennes, 2006, pp. 203-218. Review essays “Ethique et fin de vie”. Review essay of : Anne Paillet, Sauver la vie et donner la mort, Paris, La Dispute, coll. « Corps Santé Société », 2007 ; Nancy Kentish-Barnes, Mourir à l’hôpital, Paris, Seuil, 2008. (Internet site of the Collège de France, « La vie des idées », 2009 (http://www.laviedesidees.fr/Les-decisions-de-fin-de-vie-un.html). Other articles With Danielle Milhaud-Cappe et Marie Gaille, “La philosophie convoquée au chevet du patient”, in : Véronique Fournier et Marie Gaille (eds.), L’éthique clinique à l’hôpital Cochin, Centre d’éthique clinique, 2007, pp. 29-48. “Les sciences, l’histoire, la philosophie et la sociologie : quel mariage possible ?”, Rue Descartes, vol.41, 2003, pp. 1008-110 (special issue edited by J.-M. Lévy-Leblond, A quoi sert la philosophie des sciences?). "Huygens' rejection of absolute motion: some aspects of the dilemma", Physis, vol. 36, 1999, pp. 5572. ORAL PRESENTATIONS International conferences July 21st, 2015 – ICCEC 2015, Mount Sinai School of Medicine, New York (USA): Invited lecture on “Professionalization in clinical ethics” 5 Marta Spranzi - CV : mise à jour du 15/09/16, p. 6 July 21st, 2015 – ICCEC 2015, Mount Sinai School of Medicine, New York (USA): “Neutrality and impartiality in clinical ethics consultations: the consultants complex stance” July 2, 2014 - Cambridge Quarterly of Healthcare Ethics, International Bioethics Retreat, Columbia University Global Centers-Europe, Reid Hall, Paris: “Medical (un)certainty and the ethical dimension of medicine” April 24, 2014 – ICCEC 2014 (Paris, University of Paris Descartes): “The patient’s voice and a qualitative research method approach in clinical ethics » April 23, 2014 – Invited lecture, ICCEC 2014 (Paris, University of Paris Descartes): “When patients’ values challenge professional integrity: which way out?” February 18, 2014 – Brocher Foundation (Geneva, Switzerland: Symposium “On gametes and guidelines: exploring the use of interdisciplinary and empirical bioethics to inform the regulation of reproductive technologies”, organized by Jonathan Ives and Veerle Provoost): “The French bioethics public consultation and the anonymity doctrine : procedures, values and norms”. June 19-21, 2013 - Third Cambridge Consortium for Bioethics Education, Reid Hall, Paris : “Deciding and Doing: Teaching Nurses and Doctors”. June 24-26, 2013 - Cambridge Quarterly of Healthcare Ethics, International Bioethics Retreat, Columbia University Global Centers-Europe, Reid Hall, Paris : “Two Approaches to Conscientious Objection: liberalism and medical integrity”. May 6th, 2013 – Institute of biomedical ethics, University of Geneva, invited lecture : “Moral distress, reasons and context: medical intuitions about end-of-life acts”. February 13-15, 2013 – University of Göttingen, International conference on Autonomy and trust in bioethics : “Meta information and trust : making information relevant”. September 20-21, 2012 – CEVIPOF, International conference on Liberal pluralism and its critics: “The two faces of conscientious objection: the limits of pluralist liberalism”. June 22nd, 2012 – SOPHA (Paris). "Moral distress, reasons and context: a plea for moderate moral intuitionism". September 16th, 2011 – EACME Annual Conference, Istanbul (Turkey). "The ethical position of interpreters in the medical encounter: neutrality and medical ethics". May 26th, 2011 – University of The Hague (Holland). "End-of-life acts: moral intuitions and ethical theory", International Conference on Moral emotions and intuitions. May 20th, 2011 – 7th ICCEC conference, Amsterdam (with Nicolas Foureur). "Commitment in clinical ethics consultations: a benefit or a risk?" September 17th, 2010 – EACME international conference on empirical ethics, University of Olso (Norway) : "The normative relevance of cases: rhetoric and empirical ethics”. June 2nd, 2010 – ISSA Annual International Conference, University of Amsterdam (Holland): "The nature and purpose of dialectic : Aristotle and argumentation theory". 6 Marta Spranzi - CV : mise à jour du 15/09/16, p. 7 May 13th, 2010 – 6th ICCEC conference, Portland (Oregon, USA) : “The performative role of respect for autonomy. Lessons from clinical ethics consultations in the French context”. October 24th, 2008 – Cleveland (USA), Annual meeting of the ASBH (American Association of Bioethics and the Humanities : “Is Passive Euthanasia Morally Superior to Active Euthanasia ? Evidence from Pre-Reflective Judgments in the Ward”. June 14-18, 2006 – Ecole Normale Supérieure, Paris. HOPOS International conference : “Leibniz and Berkeley : the critique of absolute space and the nature of science”. June 14-18, 2006 - Amsterdam. ISSA International conference (International Association for the Study of Argumentation) : “Epistemic trust and the negotiation of comprehension in doctor-patient interaction. A case study”. January 21-23, 2005 – Ecole Normale Supérieure, Paris, Annual Conference of the French Society for Philosophy of Science : “Nature, passive euthanasia and habit” December 2004 – University of Saint Petersburg : International conference on The future of Social Sciences: “Is there a European Bioethics ?”. August 2003 – Istanbul (Turkey), XXI World Philosophy Congress: “The therapeutic contract in the treatment of eating disorders : negotiation, trust and authority”. December 2003 – University of Ghent : International conference on “The Rhetoric of scientific texts during the Scientific Revolution (organized by F. Hallyn) : “Galileo’s Dialogue and rhetoric”. November 2003 – University of Rennes, Conference on Renaissance dialogue, organized by Philippe Guérin : “Carlo Sigonio’s theory of dialogue between Humanism and Aristotelianism”. September 2002 – University of Pittsburgh (USA). Alumni Invited lecture: “Models, analogies and metaphors in scientific discovery : the case of Galileo and the mountains of the moon”. June 1999 – Tel Aviv University. International Conference on Pragmatics (Pragma 99): "Dialectic and discovery: the forgotten lesson of Renaissance Aristotelianism". National conferences December 4th, 2014 – Institute of political science, CEVIPOF, Paris : “Withdrawing treatment and persistent vegetative state : the euthanasia debate”. June 18th,2014 – MGEN (Paris), Presentation of the results of a clinical ethics research project on WANH in neonatology (Cochin hospital): “’Natural death’ and professional integrity: a philosophical analysis on the ethics of WAHN » June 12nd, 2014 – Paris, Introduction to the Midwife regional congress (ANSFT): “Why is ethical reflection necessary ?” June 11th, 2014 – St-Quentin-en-Yvelines (Association Pallium): “Clinical ethics consultation and the role of a third party in the medical relationship : risks and advantages”. 7 Marta Spranzi - CV : mise à jour du 15/09/16, p. 8 June 6th, 2014 – University of Paris Sorbonne Nouvelle, Paris ; workshop on Migration and Interpreting-mediation : Représentations, methological and conceptual issues : “Interpreters and neutrality : what is the right ethical stance ?” June 25th, 2013 – Thematic summer school (“Normativity, representations and lived experiences”), CNRS, Paris: “From application to translation: between principles, values and concrete situations”. May 28th, 2013 - Loire Atlantique conference on palliative care, Nantes : “End-of-life decisions and the patients’ voice” 13 Juin 2012 – CERSES, University of Paris Descartes, workshop on The epistemologies of bioethics, organized by Simone Bateman and Marie Gaille, CERSES : “Bioethics and clinical ethics”. December 14th, 2011 – 6th Montpellier workshop in biomedicine. “PDG: preventing handicap and deciding who will live”. March 18th, 2010 – Health Ministry, International conference on Healthcare and community interpreting, organized by ISM-interpretation : “The place of interpreters in the medical relationship: the ethics of interpreters and medical ethics”. March 17th, 2010 – University of Paris Descartes, University of Bourgogne, International conference on “Qu’est-ce qu’un bon patient ? Qu’est-ce qu’un bon médecin”, organized by Marie Gaille and Claire Crignon: “Humanity and ordinary experience: the lessons of some patients’ letters of complaint”. November 13th 2009 – Ecole Normale Supérieure, Annual Conference of the French Society for Philosophy of Science : “Informing the patient: cognitive biases and epistemic norms”. June 24th 2009 – University of Paris Descartes: “Advance directives, futile care and the models of the good death”. June 2nd, 2009 - CERSES, University of Paris Descartes, lecture series on Autonomy and freedom, organized by Michela Marzano and Speranta Dumitru: “Autonomy and self-determination: a necessary distinction”. April 25-26, 2008 – University of Angers (France) : “Information, communication and trust in the healthcare relationship”. September 2004 – Bioethics workshop at the thematic summer school in philosophy of science, organized by Anouk Barberousse and Max Kistler: “Naturalism” and “The role of principles in medical ethics”. February 2004 – University of Franch-Comté (Besançon, France) : “History of science between an exotic past and the tyranny of the present”. February 2003 – Saint Anne Mental Health Hospital, Annual conference of the network on eating disorders: “Eating disorders and involuntary hospitalization: some philosophical questions”. October 23rd, 2000 – 7th Vouillé philosophical workshop, Périgny Castle, organized by Guy Samama: “The language of the body : nature and norms in medical decisions”. 8 Marta Spranzi - CV : mise à jour du 15/09/16, p. 9 November 13th, 1999 – Henri Poincaré Institute, Paris, The Ernest Coumet workshop: "Rhetoric, dialectic and probability in the 16th century ". 9