Associations de patients soutenues par UCB en 2011 | pdf file, 49 kb

UCB SUPPORT OF PATIENT ORGANISATIONS 2011
FRANCE
Full Name of Patient
Organisation
Full Address of Patient
Organisation
Brief Description of the Nature of
Support Provided
Association
Française des
Epilepsies de l’Enfant
Champagne Ardenne
(AFEE)
Maison des Associations
63 avenue Pasteur
10000 Troyes
Association
Française des
Epilepsies de l’Enfant
Champagne Ardenne
(AFEE)
Maison des Associations
63 avenue Pasteur
10000 Troyes
Finance the meeting : patients and
their families meet experts epilepsy
and neuro-paediatricians through
conferences and workshops on Q&A
Association
Française du Lupus
et autres Maladies
Auto-Immunes
(AFL+)
2 rue Fonds de Grève
57420 Cuvry
UCB supports AFL+ association by
financing the participation of the
President to the 8th European Lupus
Meeting held in Porto- Portugal
Association
Française du Lupus
et autres Maladies
Auto-Immunes
(AFL+)
2 rue Fonds de Grève
57420 Cuvry
Association France
Parkinson
4 Avenue du Colonel
Bonnet
75016 Paris
Annual meeting on 15th April 2011 to
Troyes.
Patients and their families meet
experts epilepsy and neuropaediatricians through conferences
and workshops on Q&A
Financial
Support
1 500 €
2 000 €
1 483,07 €
Financial
Support for
contracted
services
Non-financial
invoiced
Support
Non-financial
non invoiced
Support
Country where
project/activity
took place OR
Country where
PO has main
European
location
France
France
France
Support research on Lupus and auto
immune diseases
6 000 €
Arrange the training and information
actions to make better Parkinson
disease known
15 000 €
France
France
1
February 15, 2012
UCB SUPPORT OF PATIENT ORGANISATIONS 2011
FRANCE
Full Name of Patient
Organisation
Action Contre les
Spondylarthropathies
(ACS)
Association
Française de
Narcolepsie (ANC)
Full Address of Patient
Organisation
21 rue de Fécamp
75012 Paris
Brief Description of the Nature of
Support Provided
Financial
Support
UCB supports ACS in the organization
of the 1st National Spondylarthropathy
day which will gather patients, their
families and HCPs.
The key objective of this event is to
offer people suffering from
spondilarthropathy an opportunity to
share disease experience and medical
information and discuss a variety of
topics with HCPs and other patients.
12 900 €
Association Narcolepsie
Cataplexie (ANC)
Hôpital Gui de Chauliac
34100 Montpellier
Finance the information actions, and
support patients and their family.
Support scientific research
Association
Française des
Polyarthritiques
(AFP)
9 rue Nemours
75011 Paris
AFP organization (Association
Française des Polyarthritiques) agrees
to perform Cimzia Risk Management
Plan documents review (i.e. brochure,
DVD) aimed at patients suffering from
RA.
Association
Française des
Polyarthritiques
(AFP)
9 rue Nemours
75011 Paris
Financial
Support for
contracted
services
Non-financial
invoiced
Support
Non-financial
non invoiced
Support
Country where
project/activity
took place OR
Country where
PO has main
European
location
France
5 000 €
France
AFP organization (Association
Française des Polyarthritiques) will
hold a national meeting second half of
the year. Medical information sessions,
10 000 €
5 000 €
France
France
2
February 15, 2012
UCB SUPPORT OF PATIENT ORGANISATIONS 2011
FRANCE
Full Name of Patient
Organisation
Full Address of Patient
Organisation
Brief Description of the Nature of
Support Provided
Financial
Support
Financial
Support for
contracted
services
Non-financial
invoiced
Support
Non-financial
non invoiced
Support
Country where
project/activity
took place OR
Country where
PO has main
European
location
workshops and talks will be aimed at
RA suffering patients and their
families.
UCB agrees to support the
organization on the project and will
sponsor a conference entitled
“Nutrition”.
Association
Française des
Polyarthritiques
(AFP)
Association
Française des
Polyarthritiques
(AFP)
Association Nationale
9 rue Nemours
75011 Paris
9 rue Nemours
75011 Paris
149 avenue du Maine
AFP organization (Association
Française des Polyarthritiques) will edit
a magazine aimed at patients suffering
from RA, focused on kitchen space
optimization and technical clues to
help them deal with the disease in their
everyday life.
UCB agrees to support this project
through a grant.
UCB agrees to support AFP
organization (Association Française
des Polyarthritiques) in their activities
through a grant.
This contract also determines
translation and publishing procedures
for “Easy Cuisine” magazine designed
by AFP.
20 000 €
France
10 000 €
France
This year UCB supported the
3
February 15, 2012
UCB SUPPORT OF PATIENT ORGANISATIONS 2011
FRANCE
Full Name of Patient
Organisation
Full Address of Patient
Organisation
de Défense contre
l’Arthrite Rhumatoïde
(ANDAR)
75014 Paris
Association Nationale
de Défense contre
l’Arthrite Rhumatoïde
(ANDAR)
149 avenue du Maine
75014 Paris
SPORT 4 THERAPIE
SPORT 4 THERAPIE
Brief Description of the Nature of
Support Provided
Financial
Support
association through the sponsorship of
“Polyar’ trottons” Run. UCB grant
contributes to provide support to
patients and help them improve their
everyday life.
15 000 €
UCB annual grant to support ANDAR
activities will be made public in
brochures, on ANDAR organization
internet site, on meeting programs and
in press releases under the
denomination “ avec le soutien d’UCB”
Supported by UCB (+ UCB logo)
Financial
Support for
contracted
services
Non-financial
invoiced
Support
Non-financial
non invoiced
Support
Country where
project/activity
took place OR
Country where
PO has main
European
location
France
36 000 €
France
10 Allée de Dinan
31770 COLOMIERS
Public awareness on epilepsy through
sport event – Q1/2011
Raise funds for epilepsy research
10 000 €
France
10 Allée de Dinan
31770 COLOMIERS
Public awareness on epilepsy through
sport event – Q2/2011
Raise funds for epilepsy research
10 000 €
France
4
February 15, 2012