Minisymposium News in the management of the Tuberous Sclerosis
Transcription
Minisymposium News in the management of the Tuberous Sclerosis
Minisymposium News in the management of the Tuberous Sclerosis Complex Organized by the CHUV-TSC network Wednesday March 26 2014, Auditoire de la Maternité, CHUV, Lausanne 14:00 : Welcome. O. Bonny 1. Treatment of the Tuberous Sclerosis Complex (in English) Chair : Dr. S. Lebon and Dr. H. Chehade 14:10 : Pr. K. Kotulska, Warsaw : EXIST1 and EXIST2 trials: efficacy and safety of everolimus in TSC 14:50 : Dr. A. Serra, Zurich : Risk/benefit of long term rapamicine treatment in chronic diseases 15:30 : Pause 2. CHUV TSC-network – Le réseau « Sclérose tubéreuse de Bourneville » à Lausanne. (in French and/or English) Chair : Dr. F. Barbey and Dr. F. Fellmann 16:00 : Skin-La peau : Dr. S. Christen, CHUV, Lausanne 16:20 : Brain-Le cerveau: Dr. C. Wider, CHUV, Lausanne 16:40 : Lungs-Les poumons : Dr. R. Lazor, CHUV, Lausanne 17:00 : Kidneys-Les reins: Pr. O. Bonny, CHUV, Lausanne 17:20 : Genetics-La génétique: Dr. F. Fellmann, CHUV, Lausanne 17:40 : Les initiatives: 1. Swiss TSC network and registry / 2. L’association de patients STB-Suisse 18:00 : Fin du meeting The meeting is endorsed by the Working Group on Inherited Kidney Disorders of the Swiss Society of Nephrology. CME credits: Swiss Society of Nephrology: 3.5h; Swiss Society of Medical Genetics: 3h. Pr Franz and Dr Serra lectures and travel expenses are supported by Novartis and the Association STB Suisse.