abstracts

I2D – Information, données & documents.
Techniques et recherche
N° 3, septembre 2016
ABSTRACTS
Translation by Susan Vaillant
Documentaliste de formation après une licence américaine en lettres anglaises, Susan VAILLANT a pratiqué, au cours de sa carrière, de
nombreux « nouveaux » métiers en gestion de l'information, tels que formatrice à la recherche en ligne, responsable « records management », responsable (privacy officer) de la mise en place de programmes de conformité avec la réglementation européenne sur la protection des données personnelles. Elle s'est aussi investie dans la vie associative en tant que présidente ou secrétaire fondatrice notamment
du groupe régional Est-France de l'ADBS et au comité directeur de l'AFCDP.
DOSSIER. P. 28-69
HEALTH ECOSYSTEM : NEW WAYS TO REGULATE INFORMATION
Dossier directed by Danielle DUFOUR-COPPOLANI (Éducation nationale) and Parina HASSANALY (Université Aix Marseille)
INTRODUCTION. P. 28-29
Danielle DUFOUR-COPPOLANI and Parina HASSANALY
The structure and organization of the French health system is changing. Its ecosystem now includes a broad "smart
city" networked structure. Medical data can be found in the different facets of this complex ensemble made up of
shared information that directly concern a great number of stakeholders. Information dissemination, digital architecture, digital identity, sensitive data storage: in all these areas, mastering information management in the
healthcare sector will be accompanied by economic and legal issues, as well as authentic perspectives for information professions.
01. HEALTH INFORMATION PROFESSIONS. P. 30-41
Our first section concerns the information professions and presents a variety of experiments focused on the use of health
data in both public and private sectors.
Health data, an opportunity for information professionals. Nathalie Berriau (Ascodocpsy). P. 30-31
Computerization has brought a new dimension to health data. Healthcare professionals, researchers, government,
industry leaders, associations and ordinary citizens in great number are studying the perspectives offered by
eHealth in terms of innovation and regulation. To master this new perimeter, specific types of jobs will dominate.
However, information professionals have their place in this ecosystem where collecting, processing and adding value to this special type of data will require highly specialized organizational, technical and legal skills and the capacity to adapt to new partnerships.
New intermediation professions in health interface organizations. Christian Bourret (Université Paris Est Marne-laVallée). P. 32-33
Between scientific information and health data, the multiple skills of information professionals. Sandrine Louis (Genzyme). P. 34-35
“French public health communication and information departments and the utilization of the data they produce”. Céline
Deroche (Santé Publique France), interviewed by Danielle Dufour-Coppolani. P. 36-37
Ethics and data. Alain Couillault (GFII). P. 38-39
Scanning the biomedical landscape. Charles Huot (Expert System). P. 40-41
02 INFORMATION SYSTEMS AND HEALTH SYSTEM. P. 42-55
Our second section presents the broader issues raised by health data, illustrated by some of the difficulties encountered in
implementing the shared medical record.
Data in structuring health information systems. Danielle Dufour-Coppolani (Éducation nationale) et Parina Hassanaly
(Université Aix Marseille). P. 42-43
Four themes dominate the 2012 plan developed for public sector health information systems: digitizing health establishments and professions, coordinating health care, patient information and piloting the health system. Representatives of a cross-section of both public and private sectors are key stakeholders. Sharing medical records, a key tool of
eHealth, requires an interoperability that is indispensable to urbanization, including a function that provides information to the patient who is also a stakeholder in this network.
The Electronic Patient Record: improving national information system governance; lessons learned. Marius Fieschi (Fac-
ulté de médecine de Marseille). P. 44-45
Digital healthcare: developing interoperability to meet future needs. Michel Gagneux (Asip Santé). P. 46-47
Opening access to public databases: update and issues. Christian Babusiaux (Cour des comptes). P. 48-50
Public sector action to favor a virtuous approach to computerization in the healthcare sector.
Philippe Burnel (Ministère des Affaires sociales et de la Santé). P. 51-52
Serving the stakeholders: the revival of the Shared Medical Record. Yvon Merlière (CNAMTS). P. 53-54
The Electronic Patient Record, a health information zone. Danielle Dufour-Coppolani (Éducation nationale). P. 55
03 ECONOMIC AND LEGAL ISSUES. P. 56-67
This third section explores the economic and legal issues of health information and their impact on its users.
Examining eHealth. Jean-Yves Robin (OpenHealth Company). P. 56-58)
Computerization is a technological rupture at the root of what we now call the digital revolution. The source of
profound and multiple transformations of society, its impact is so systematic that it becomes more and more complex and illusory to take a sector-based approach. But that is exactly what eHealth is trying to do. Simply introducing the topic of eHealthcare means emphasizing its many forms and finally questioning its limits. The "datafication"
of our lives, like the very air we breathe, is everywhere and for the most part, invisible. The importance of mastering those innovations on which will depend problems as critical as equal access to healthcare or the capacity to
treat and heal, make eHealth a legitimate subject, similar to the large mutation of industry and the service sector,
for government oversight. The French model of excessive regulation is at the heart of those difficulties encountered by the eHealth sector as it develops in France.
Having confidence in digital health data. What are our priorities for taking action? Roland Rizoulières (Sciences Po Aix). P.
59-60
New rules for accessing medical-administrative databases - what will be the impact on data access? Jeanne Bossi Malafosse (DLA Piper). P. 61-64
The connected patient and health data: the real risks. Magali Léo (Collectif interassoactif sur la santé (CISS)). P. 65-66
"It’s essential to enable a better understanding of digital issues by patients and doctors”. Yann Bonnet (Conseil national
du numérique). Interviewed par Michèle Battisti. P. 67
SOURCES & RESOURCES. Selected by Danielle Dufour-Coppolani (Éducation nationale). P. 68-69
INFORMATION SCIENCE RESEARCH
Open Access impact on citations: a case study
Frédérique BORDIGNON (École des Ponts ParisTech), Mathieu ANDRO (Inra). P. 70-79
Many studies have sought to assess the impact of Open Access on the citation rate of scientific articles. This study,
in French, is limited to publications in 2010 from the Ecole des Ponts. It nevertheless offers a state of the art of
previous studies on the subject to a readership of Francophone professionals. Its originality is to measure the
average number of citations per month before and after opening access to the articles and avoids most of the
biases that may be generated in this type of approach.