Canadian Hidradenities Suppurativa Foundation

February 2015
Canadian Hidradenities Suppurativa Foundation
The Canadian Hidradenitis Suppurativa Foundation was formed in October 2014 by a group of
dermatologists in order to meet several unmet needs for this group of patients. The foundation is
supported in part by an educational grant from AbbVie Corporation.
The average Canadian Hidradenitis Suppurativa (HS) patient will see five doctors over 17 visits
spanning eight or more years before being diagnosed. HS is a chronic, inflammatory skin disease
with very painful, smelly, deep-seated lesions (nodules or abscesses) and purulent drainage.
It has been estimated to affect 1% of the global population however this represents only individuals
with a recognized diagnosis. HS affects dermatology life quality index more than any other chronic
dermatological disease. There is little clinical data supporting effective treatment and no Canadian
treatment guidelines to guide optimal referral and management. Patients often suffer for years
leaving them frustrated in addition to being helpless and ashamed.
This organization will promote education, research and patient care in the field of Hidradenitis
Suppurativa/Acne Inversa. Funds will be raised to support scientific meetings for the education of
physicians, patients and laypersons in accordance with Canadian Law. The mission of CHSF is to
improve the quality of care and daily life of Canadians living with Hidradenitis Suppurativa:
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To build knowledge of HS and associated health issues for patients and their circle of care to
ensure that HS patients lead productive and healthy lives
To create more opportunities for research to serve this unmet patient population
To establish cross-specialty dialogue to improve HS patient outcomes and contribute to
sustaining our health care system
To collaborate with US, European, and other global HS foundations to leverage from each other
The CHSF is hosting a HS scientific session at the WCD on June 8th from 1-5 pm with a panel of
world HS experts organized by Dr. Afsaneh Alavi and Dr. Alain Brassard. We look forward to seeing
you at the Vancouver meeting.
Please contact [email protected] for membership information.
Editorial Board /
Conseil de rédaction
National editor/
Rédacteur en chef
Charles W. Lynde, MD
Markham, ON
Chief Executive Officer /
Chef de la direction
Chantal Courchesne
Ottawa, ON
Regional editors /
Rédacteurs régionaux
Robert Jackson, MD
Ottawa, ON
Paul Kuzel, MD
Edmonton, AB
Benjamin Barankin, MD
Toronto, ON
Ian Landells, MD
St. John’s, NL
G. Daniel Schachter, MD
Toronto, MD
Marc Bourcier, MD
Moncton, NB
Catherine McCuaig, MD
Montréal, QC
Victoria Taraska, MD
Winnipeg, MB
Nicole Hawkins Scoon, MD
Saskatoon, SK
Kathleen Moses, MD
Ottawa, ON
Catherine Zip, MD
Calgary, AB
Statements and opinions expressed in the CDA eBulletin
reflect the opinions of the authors and not necessarily the
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The Canadian Dermatology Association eBulletin is issued monthly as a
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members’ opinions. Please notify the Chief Executive Officer of any
change in address.
L’Association canadienne de dermatologie publie chaque mois le
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d’informations qui pourraient intéresser nos membres, ainsi que pour
recueillir leurs opinions. Prière d’aviser Chantal Courchesne, chef de la
direction, de tout changement d’adresse.
CHANTAL COURCHESNE
CHIEF EXECUTIVE OFFICER / CHEF de la DIRECTION
425-1385 rue, Bank Street, Ottawa, ON K1H 8N4
Tel: (613) 738-1748 / 1-800-267-3376 | Fax: (613) 738-4695
[email protected]