9th annual Conference / 9e Conférence annuelle september 26, 27

Transcription

9th annual Conference / 9e Conférence annuelle september 26, 27
9th Annual Conference /
9e Conférence annuelle
National Arts Centre,
Ottawa, Ontario, Canada
September 26, 27, 28, 2012 /
26, 27, 28 septembre, 2012
Conference programme & speakers
We promise to be there
It gives me great pleasure to extend greetings to everyone taking part
in the Brain Injury Association of Canada (BIAC) Annual Conference.
Every day, the courage and determination of people with brain
injuries is matched by that of the health care and research communities,
who are doing all they can to foster healing and advocate for prevention.
Neurological research, personal support and new treatment plans have
vastly improved the quality of life for patients and their families.
While such advancements continue to make a difference in countless
lives, there is still more work to be done. That is why I am proud to support
BIAC’s members as you delve ever-deeper into the study of brain injuries
and encourage all Canadians to be aware and stay safe.
I wish everyone an informative conference.
Photo: Sgt Serge Gouin, Rideau Hall
© Her Majesty The Queen in Right of Canada represented by the Office of the Secretary to the Governor General
(2010) / © Sa Majesté la Reine du Chef du Canada représentée par le Bureau du secrétaire du gouverneur général (2010)
David Johnston
September 2012
C’est avec grand plaisir que j’adresse mes salutations à tous ceux et
celles qui prennent part à la conférence annuelle de l’Association
canadienne des lésés cérébraux (ACLC).
Chaque jour, le courage et la détermination des personnes souffrant
de lésions cérébrales n’ont d’égal que ceux des milieux des soins de santé
et de la recherche, lesquels font l’impossible pour faire progresser les soins
et prôner vigoureusement la prévention. La recherche dans le domaine
neurologique, le soutien personnel et les nouveaux régimes de traitement
ont grandement aidé à accroître la qualité de vie des patients et de leurs
familles.
Bien que ces progrès continuent d’améliorer le sort d’une multitude
de gens, il reste encore beaucoup à faire. C’est la raison pour laquelle je
suis fier d’appuyer les membres de l’ACLC, vous qui ne cessez
d’approfondir l’étude des lésions cérébrales et d’encourager tous les
Canadiens à faire preuve de prudence pour éviter les accidents.
Je vous souhaite une conférence des plus enrichissantes.
David Johnston
Septembre 2012
I am pleased to extend my warmest greetings to everyone attending the ninth Annual Conference of the Brain Injury Association of Canada (BIAC). In its short history, the Brain Injury Association of Canada has made tremendous progress in promoting awareness of brain injury and advocating for its prevention through public education and support for safety legislation. When one considers the attention currently paid to the risk of concussion in both recreational and professional sports, it is obvious that attitudes about preventable injury are changing. We will never remove all risks inherent in living, but we can work towards reducing the incidence of injury and the consequent personal and economic burdens. I would like to commend BIAC members for working so diligently to improve the quality of life of both families and survivors of acquired brain injury. Your efforts are a fine example of the good that comes from people working cooperatively to change lives for the better. On behalf of the Government of Canada, I offer my best wishes for a productive conference. OTTAWA 2012 The Rt. Hon. Stephen Harper, P.C., M.P.
The Rt. Hon. Stephen Harper, P.C., M.P. C’est avec plaisir que je salue chaleureusement tous ceux et celles qui assistent à la 9e conférence annuelle de l’Association canadienne des lésés cérébraux (ACLC). Bien qu’elle soit encore jeune, l’ACLC a permis d’énormes progrès sur le plan de la sensibilisation et de la prévention en éduquant le public et en militant pour une législation sur la sécurité. Il est plus que jamais question des risques d’avoir une commotion cérébrale, autant dans le sport récréatif que dans le sport professionnel. Un changement d’attitude évident se produit à l’égard de blessures qu’il est possible de prévenir. Le risque fait partie de la vie, mais il est tout à fait possible de réduire le nombre de blessures et les conséquences de celles‐
ci. Je tiens à féliciter les membres de l’ACLC qui travaillent avec diligence à améliorer la qualité de vie des lésés cérébraux et de leurs proches. Vos efforts montrent bien qu’il est possible de changer des vies lorsqu’on unit nos forces. Au nom du gouvernement du Canada, je vous souhaite une conférence des plus enrichissantes. OTTAWA 2012 Le très honorable Stephen Harper, c.p., député Premier of Ontario - Premier ministre de l’Ontario
September 26-28, 2012
A PERSONAL MESSAGE FROM THE PREMIER
On behalf of the Government of Ontario, I am delighted to extend
greetings to everyone attending the 2012 Brain Injury Association of
Canada (BIAC) Annual Conference.
The health and well-being of Ontarians are our province’s most
valuable resources. Acquired Brain Injury (ABI) is a condition that has
potentially huge financial and emotional costs — for the individual, for
their families and for our health care system. Prevention, through
education and safety advocacy, is one of our most effective weapons
against ABI.
I would like to commend BIAC for its dedication to helping improve the
quality of life of those living with ABI and promoting its prevention.
Through this annual event, you bring together survivors, researchers
and service providers to discuss how to build awareness and
understand the effects of brain injuries, while helping to reduce the
number of incidents. Thank you to everyone who has contributed to
ensuring the success of this important event — and for sending out a
message of hope to Canadians living with ABI.
To first-time and repeat visitors to Ottawa: welcome to Canada’s
capital and my hometown! I can assure you that a warm welcome
awaits you — and I hope you find the time to enjoy some of the many
outstanding sites and attractions this beautiful and historic city has to
offer.
Please accept my best wishes for an enjoyable and successful
conference.
Dalton McGuinty, MP, Premier of Ontario
Premier of Ontario - Premier ministre de l’Ontario
Du 26 au 28 septembre 2012
MESSAGE DU PREMIER MINISTRE DE L’ONTARIO
Dalton McGuinty
Premier
Au nom du gouvernement de l’Ontario, j’aimerais transmettre mes plus
chaleureuses salutations aux participants et aux participantes au congrès
annuel 2012 de l’Association canadienne des lésés cérébraux (ACLC).
La santé et le bien-être des Ontariens et des Ontariennes comptent parmi
les ressources les plus précieuses de notre province. Une lésion cérébrale
acquise peut facilement entraîner d’énormes coûts financiers et émotifs
pour la personne atteinte, les membres de sa famille et notre réseau de
soins de santé. La prévention qui résulte de la sensibilisation et de la
promotion de la sécurité est l’un des meilleurs moyens à notre disposition
pour éviter les lésions cérébrales.
Je tiens à féliciter l’ACLC de son travail assidu afin d’améliorer la qualité
de vie des personnes vivant avec une lésion cérébrale acquise et de
promouvoir la prévention des blessures. Grâce à cet événement annuel,
l’ACLC rassemble des survivants, des chercheurs et des fournisseurs de
services afin d’aborder des questions portant sur la sensibilisation du
public aux lésions cérébrales, la compréhension des effets des
traumatismes crâniens et la réduction du nombre de cas. Je remercie tous
ceux et toutes celles qui, par leur travail soutenu, ont veillé à assurer le
succès de cet important événement, contribuant ainsi à envoyer un
message d’espoir aux Canadiens et aux Canadiennes aux prises avec une
lésion cérébrale acquise.
Bienvenue à Ottawa, la capitale du Canada et la ville où j’ai grandi! Soyez
assurés que vous serez accueillis chaleureusement partout où vous irez.
Et j’ose croire que vous trouverez le temps de profiter de ce que cette
magnifique ville historique a de plus beau à offrir.
Je vous souhaite un congrès rempli de succès.
Le premier ministre de l’Ontario,
Dalton McGuinty
On behalf of Members of Ottawa City Council, it is my
distinct pleasure to extend a very warm welcome to the
delegates participating in the 9th Annual Conference of
the Brain Injury Association of Canada (BIAC),
meeting under the theme Brain Injury The Untold Truth,
and taking place at the National Arts Centre in the
heart of our nation’s capital, from September 26 th to 28th
2012.
I want to acknowledge the BIAC for providing a
valuable forum for professionals and other
stakeholders specializing in the field of brain injury, as
well as persons who have sustained a brain injury, to
network and learn more about brain injury, as it
pertains to education integration and reintegration,
sports, prevention and protective equipment.
Delegates will also have the opportunity to attend
engaging presentations focussing on new research and
health care service models in the industry, in addition
to innovative therapeutic applications like music
therapy and equine experiential learning.
As Head of Council, I congratulate the conference
facilitators, keynote speakers and sponsors for
dedicating efforts, expertise and resources to the
successful organization of this important meeting of
national scope.
As Mayor of the host city, I invite visitors to explore
the Ottawa Sports Hall of Fame and the new Barbara
Ann Scott Gallery, both housed at City Hall.
Allow me to convey my best wishes to all the
participants for a very productive and rewarding
gathering, as well as a most enjoyable stay in Ottawa.
Sincerely,
Au nom des membres du Conseil municipal d’Ottawa,
j’ai l’immense plaisir de souhaiter une très chaleureuse
bienvenue aux délégués participant à la 9e conférence
annuelle de l’Association canadienne des lésés
cérébraux (ACLC). Cet événement aura pour thème
Brain Injury The Untold Truth (la vérité tue sur les
lésions cérébrales) et se tiendra au Centre national des
Arts, en plein cœur de notre capitale nationale,
du 26 au 28 septembre 2012.
Je salue l’ACLC qui offre aux professionnels et aux
autres intervenants du domaine des lésions cérébrales,
mais également aux personnes ayant subi une lésion
cérébrale, une précieuse tribune qui leur donnera
l’occasion de réseauter et d’approfondir leurs
connaissances sur les lésions cérébrales en ce qui a trait
à l’intégration et la réintégration scolaires, aux sports, à
la prévention et à l’équipement de protection.
Les délégués pourront également assister à des exposés
intéressants qui porteront sur de nouvelles recherches
et de nouveaux modèles de prestation de services de
soins de santé dans le domaine, mais aussi sur des
méthodes thérapeutiques novatrices, comme la
musicothérapie et l’apprentissage par l’expérience avec
des chevaux.
À titre de chef du Conseil municipal, je félicite les
animateurs, les conférenciers et les commanditaires de
cette conférence d’avoir consacré efforts, expertise et
ressources pour assurer le succès de cet important
événement d’envergure nationale.
En ma qualité de maire de la ville hôtesse, j’invite les
visiteurs à découvrir le Temple de la renommée des
sports d’Ottawa ainsi que la nouvelle Galerie BarbaraAnn-Scott, tous deux situés à l’hôtel de ville.
Permettez-moi de souhaiter à tous les participants la
plus enrichissante et fructueuse des conférences ainsi
qu’un très agréable séjour à Ottawa.
Cordialement,
Jim Watson, Mayor/Maire
It is a pleasure for me to welcome you to the Ninth Annual Conference
of the Brain Injury Association of Canada. What a wonderful
opportunity to experience this conference in the beautiful city of Ottawa!
Larry Carlson
We have a great variety of presenters this year. I hope through this conference;
whether you are a survivor, a family member, a professional or just an interested person;
you can go home with new information that will continue to be helpful to you.
Best wishes for an enjoyable and profitable time here.
Larry Carlson
President, BIAC
Dear Participant,
It is a great pleasure to welcome you to the 9th annual BIAC Conference
“Brain Injury, The Untold Truth”.
Barb Butler
We hope that the conference will be a rewarding and useful experience for you.
I’d like to thank each of you for attending our conference and bringing your expertise to
our gathering. You have the vision, the knowledge, the wherewithal and the experience to
help us pave our way into the future. You are truly our greatest asset today and tomorrow,
and we could not accomplish what we do without your support and leadership. Throughout
this conference, I ask you to stay engaged, keep us proactive and help us shape the future
of the Brain Injury Association of Canada.
My personal respect and thanks goes out to all of you.
Barb Butler
2012 Conference Chair
DAY ONE AM
Wednesday, September 26, 2012
Mercredi, le 26 septembre 2012
8:30 - 8:45
Welcome / Mot de bienvenue
8:45 - 10:15Keynote 1 – ‘Keys to the ABI Cage: a new way to understand and talk about brain injury to help
people help themselves’, Panorama Room
Dr. Christine Durham, Talk About Change, Bundoora, Australia.
10:15 - 10:30
Dr. Christine Durham
Nutrition Break / Pause santé Panorama Room
ONF is committed to
research and its impact on
quality of life
for people living with
Acquired Brain Injury
10:30 - 11:15Breakout 1A – Research and Health Care Panorama Room Presented by
www.onf.org
‘Who waits in acute care after an acquired brain injury in Ontario’
Angela Colantonio, PhD, OT Reg. (Ont.)., FACRM, University of Toronto and Toronto Rehabilitation Institute – UHN
Breakout 1B – Prevention and Education Mezzanine Level
‘Teacher Preparation for Students with TBI: Who is Teaching Tomorrow’s Teachers?’
Jacqueline Vintar Smith, Washington, D.C.
Breakout 1C – Support - Social Skills Ampitheatre Level
‘The Strongest Predictor of Employment Success: Now What?’
Alison Nicholson- Hamilton, Ontario
Breakout 1D – Family/Survivor/Caregiver Salon Room
‘The Road to Graduation: A model for successful integration of a student with a significant
brain injury and severe communication challenges into a high school environment’
Mary-Ellen Thompson, Ph.D., Lisanne Mitts & Kaitlyn Woods- Belleville, ON
Breakout 1E – Séance parallèle 1E - French language presentation- Présentation en langue française
Research and Health Care - Recherche et soins de santé Fountain Room
‘Observations cliniques suite à l’utilisation de la pharmacostimulation auprès de victimes
de TCC modéré-grave’
Dr Serge Bergeron, omnipraticien et médecin conseil en neurotraumatologie au CSSS de Chicoutimi, et
Claude Dubé, PhD, professeur en neuropsychologie clinique à l’Université du Québec à Chicoutimi, Québec
Angela Colantonio
11:15 - 11:30 Coffee/Water Break - Pause santé Panorama Room
ONF is committed to
research and its impact on
quality of life
for people living with
Acquired Brain Injury
11:30 - 12:15Breakout 2A – Research and Health Care Panorama Room Presented by
www.onf.org
‘Reintegrating/Managing Students with Concussion in a Post Secondary Setting:
Creating a Safety Net’
Irene Sullivan-Toronto, ON
Breakout 2B – Prevention and Education Mezzanine Level
‘Concussion Recovery: Rebuilding the Injured Brain’
Colleen Butler, Vancouver, B.C.
Breakout 2C – Support Ampitheatre Level
‘The Disconnected Disability and Access to Income Support Services’
Jeff Chartier and Frank Murphy - Durham Region
Colleen Butler
Breakout 2D – Family/Survivor/Caregiver Salon Room
‘Challenges Living With An Invisible Injury’
Jennifer Hooper, Ottawa, ON and Larry Carlson, Regina, SK
(This session will be led by Larry and Jennifer but is an opportunity for audience members to weigh
in with their opinions on the challenges of having a brain injury and having to function in society.)
Breakout 2E – Séance parallèle 1E - French language presentation- Présentation en langue française
Research and Health Care - Recherche et soins de santé Fountain Room
‘Acute global outcome in patients with mild uncomplicated and complicated traumatic
brain injury’ (en français)
Dr Jehane H Dagher, MD, BScPT, FRCPC, FABPMR, Physiatre - Institut de Réadaptation de Montréal et
Hôpital Général de Montréal, Professeure adjointe - Université McGill
Dr Jehane H Dagher
12:15 - 1:15
L
UNCH – Dîner - Luncheon Speakers Shred 4 A Cause Canada Tour 2012, Mike Harris and Jeff Abbott
Southam Hall Foyer
DAY ONE PM
Wednesday, September 26, 2012
Mercredi, le 26 septembre 2012
1:15 - 2:15Keynote 2 – Head Injuries in Children, the Concussion Research Project at CHEO and ThinkFirst
M. Vassilyadi, MD, Ottawa, ON Panorama Room
2:15 - 2:30
Coffee, Water Break / Pause santé Panorama Room
2:30 - 3:15Breakout 3A - Research and Health Care - Susceptibility weighted imaging and its relationship to
outcome after pediatric traumatic brain injury Panorama Room Presented by ONF
Miriam H. Beauchamp- Montreal, QC
Breakout 3B - Prevention and Education- Educating Football Trainers and Coaches on Sideline
Management of Concussions Mezzanine Level
Mona B Allan, RN, MScN., Ottawa, ON
M. Vassilyadi, MD,
Breakout 3C - Support - Assessing client risk for adults with acquired injuries – the development and
validation of a Risk Assessment Scale at Brain Injury Services Ampitheatre Level
Vlad Bartchouk, Manager, Transitional Living Services Hamilton, ON
Breakout 3D - Family/Survivor/Caregiver - Exploding the Two-Year Myth of ABI Recovery Salon Rm
Leslie Birkett BSc. OT, OT Reg. (Ont.), Dr. H. Jane Storrie, Ph.D., C.Psych. ABDA – Burlington, ON
Breakout 3E – Séance parallèle 3E - French language presentation- Présentation en langue française
Research and Health Care - Recherche et soins de santé Fountain Room
Modèle regional de prise en charge des victimes de TCC léger dans la région du Saguenay Lac St-Jean
au Québec
Guylaine Gobeil, conseillère en soins infirmiers, et Dr Serge Bergeron, omnipraticien et médecin conseil en
neurotraumatologie, CSSS de Chicoutimi
Leslie Birkett
3:15 - 3:30 Nutrition Break - Pause santé Panorama Room
3:30 - 4:15Breakout 4A - Research and Health Care - Modifiable Factors that Enhance Successful Scholastic
Reintegration for Students who have experienced Moderate to Severe Acquired Brain Injuries
Dr. Peter Rumney, Kathy Wlodarczyk and Dr. Christine Beauregard (CHEO) Panorama Room Presented by ONF
Breakout 4B - Prevention and Education-Demonstrations of Effective Skill Training with Adults with
Acquired Brain Injuries Using Direct Training Techniques- Support Mezzanine Level
Dr. Bruce Linder, Clinical Director, and Liana McLeod, B.A., R.T., Brain Injury Services, Hamilton, ON
Breakout 4C - Mentor and Partner Outcomes from an Ontario ABI Peer Support Mentoring Program
Kathryn Boschen, PhD, CPsych, University of Toronto and Bridgepoint Health, and
Judith Gargaro B.Sc., MEd, West Park Healthcare Centre Ampitheatre Level
Breakout 4D - Family/Survivor/Caregiver - Creating a New Story – A Journey to Full Recovery
Cristy Hayden, MA, B.Sc - Calgary, AB Salon Room
Breakout 4E - Séance parallèle 4E - French language presentation- Présentation en langue française
Research and Health Care - Recherche et soins de santé Fountain Room
Troubles du sommeil et douleur suite à un traumatisme crânien léger : étude prospective
Samar Khoury, PhD(c), Hôpital du Sacré-Cœur de Montréal, Québec
Dr. Bruce Linder
3:15 - 3:30 Refreshment Break - Pause santé Panorama Room
4 :15 - 4:30Keynote 3 - From Grave to Cradle to Now - A tale of miracles, discoveries, horror, laughter and love by
the father of a traumatically brain injured son. His discoveries include using the blood harmony of the
collaterally damaged family as a lifesaving instrument, healing patient and family. From his book by the
same name from Marrette Publishing at Marrette.cc/hcpro.html
Ian McCallum - Toronto, Ontario Panorama Room
Ian McCallum
DAY TWO AM
Thursday- September 27, 2012
Jeudi, le 27 septembre 2012
9:00 - 10:00Keynote 1 – ‘Unlocking Performance’ is an awakening journey from childhood leg braces, the unlikely
rise to the National Hockey League by 18, brain & spinal cord injury and lessons learned.
The story delineates Doug’s realizations after being paralyzed and experience of taking control of
his mental conditioning, self image, trauma and performance in his business and personal life after
hockey, to raising your own personal and business performance levels today. Experience recovery
techniques for the mind, key lessons learned along the way & success secrets beyond sports, ego and
the physical identity. Doug Smith, Ottawa, Ontario Panorama Room
10:00 - 10:15
Doug Smith
Nutrition Break / Pause santé Panorama Room
ONF is committed to
research and its impact on
quality of life
for people living with
Acquired Brain Injury
10:15 - 11:00Breakout 1A – Research and Health Care Panorama Room Presented by
www.onf.org
‘Assessing cognitive function in brain injured patients with impairments in consciousness’
Loretta Norton, PhD student, University of Western Ontario
Breakout 1B – Prevention and Education Mezzanine Level
‘The Effectiveness of Self Awareness Training.’,
Kristin Bouma – Hamilton, ON
Breakout 1C – Support - Social Skills Ampitheatre Level
‘Support-The Use of Music Therapy with Individuals Who Have Experienced Brain Injury’
Cheryl Jones, Ottawa, ON
Breakout 1D – Family/Survivor/Caregiver Salon Room
‘Equine Experiential Learning’,
Sharon Campbell Rayment - R.N., B.Sc.N., M.Div., Kent Bridge, ON
Cheryl Jones
Breakout 1E – Séance parallèle 1E - French language presentation- Présentation en langue française
Research and Health Care - Recherche et soins de santé Fountain Room
‘Conséquences cognitives du traumatisme cérébro-crânien chez l’enfant’
ONF
is committed to de- Montréal
Miriam H. Beauchamp, PhD, Professeure adjointe au département de psychologie,
Université
research and its impact on
11:00 - 11:15 Coffee/Water Break - Pause santé Panorama Room
quality of life
for people living with
Acquired Brain Injury
11:15 - 12:00Breakout 2A – Research and Health Care Panorama Room Presented by
‘Acute global outcome in patients with mild uncomplicated and complicatedwww.onf.org
traumatic brain injury’
Dr Jehane H Dagher, MD, BScPT, FRCPC, FABPMR, Physiatrist - PM&R,Professeur adjoint - Physiatrie
Universite de Montreal,Institut de Readaptation de Montreal Assistant Professor - Physical Medecine & Rehab
McGill University, Montreal General Hospital
Breakout 2B – Prevention and Education Mezzanine Level
‘Prevention of a different kind! The Importance of Dental Health’
Victoria Leck, RDH, BHA-Manager of professional development The Canadian Dental Hygienists Association, Ottawa, ON
Jennifer Cobersky
Breakout 2C – Support Ampitheatre Level
‘Acquired Brain Injury System Navigators – Improving & Enhancing the Experience of Care for
Individuals Who Suffer an Acquired Brain Injury in Ontario’
Jennifer Cobersky – North Ontario Regional ABI System Navigator, Alicia Nichols – North Simcoe Muskoka ABI
System Navigator, Veronica Pepper – Hamilton Niagara Haldimand Brant ABI System Navigator
Breakout 2D – Family/Survivor/Caregiver Salon Room
‘My Hopes for the Forgotten People’
Jessica Elizabeth Taylor, Oceanside Brain Injury Society & Resort Network in Parksville, B.C.
Breakout 2E – Séance parallèle 1E - French language presentation- Présentation en langue française
Research and Health Care - Recherche et soins de santé Fountain Room
‘Résilience de familles dont un adolescent est atteint d’un traumatisme craniocérébral : développement
d’une intervention de soutien’ (en français)
Jérôme Gauvin-Lepage, PhD(c), Hôpital juif de réadaptation, Laval, Québec
Anna Reid, MD, CCFP-EM
12:00 - 1:30LUNCH – Dîner BIAC Awards Luncheon - Remise des prix de l’ACLC- President of the Canadian
Medical Association, Anna Reid, MD, CCFP-EM Southam Hall Foyer
DAY TWO PM
Thursday- September 27, 2012
Jeudi, le 27 septembre 2012
1:30 - 2:45Keynote 2 – After the Crash: A Play about Brain Injury - Elliot is a young professional who has suffered
a traumatic brain injury. Because of this experience, he is faced with the challenge of rebuilding his
life and his relationships, and the people around him play an important role in his struggle towards
recovery. Panorama Room
Co-Produced by Ruckus Ensemble & Toronto Rehabilitation Institute
The Cast
Elliott
Steven James
Jane
Megan Dennis
Dr Jeffreys, Trish, Celia
Melina Nacos
Dr Barndt, John, Pete
Mark Prince
Swapna Mylabathula
The Team
Directed by: Julia Gray & Sarah Gale, Written by: Julia Gray and The Ensemble
Stage Manager: Giselle Clarke-Trenaman, Dramaturge/Data Analyst: Kate Rossiter
Bed Design: David Hoekstra, Set Design: Lindsay Anne Black
Research Investigators
Dr. Angela Colantonio & Dr. Pia Kontos, Co-Principal Investigators
Dr. Michelle Keightley & Dr. Julie Gilbert, Co-Investigators
The performance runs 55 minutes long, with no intermission.
There will be a 15 minute Q and A, after the performance.
E. Aiofe Freeman
2:45 - 3:00
Break
/ Pause
santé Panorama Room
Coffee, Water ONF
is committed
to
research and its impact on
quality of life
for people living with
Acquired Brain Injury
3:00 - 3:45Breakout 3A - Research and Health Care - ‘2013 CARF Brain Injury Standards’ Panorama Room
Presented by
Cathy Rebella, Tuscon, Arizona,CARF International, Resource Specialist
www.onf.org
Breakout 3B - Prevention and Education - ‘An Analysis of Concussion Management Protocols of
Selected Sports Organizations’ Mezzanine Level
Swapna Mylabathula, B.Sc. (Honours), University of Toronto, Toronto, ON
Breakout 3C - Support and Advocacy - ‘I am who I am because of it”: Experiences of Adolescents
Living with a Parent who Acquired a Brain Injury’ Fountain Room
E. Aiofe Freeman & Dr. Sharon E. Robertson, University of Calgary, Alberta
Breakout 3D - Family/Survivor/Caregiver - ‘Errorless Learning to Increase Self Reliance in the
Life of a Brain Injury Survivor’ Salon Room
Jennifer Lemke, Toba Miller, Ottawa, Anju Aggarwal, ON
3:45 - 4:00 Paula Ealey
Nutrition Break - Pause santé Panorama Room
4:00 - 4:45Breakout 4A - Research and Health Care - ‘UNEXPECTED….EXPECT IT
ONF is committed to
research and its impact on
quality of life
for people living with
Acquired Brain Injury
CONNECT Lake Country: A NEW SERVICE MODE Panorama Room Presented by
Karen Tims, Leader CONNECT Lake Country, BC, Patti Flaherty, Executive Director, CONNECTwww.onf.org
Lori Seeley, CIHS Practice Lead, CDMA and Community Allied Health Interior Health
Breakout 4B - Prevention and Education - ‘Medical Scooter Awareness Program’ Mezzanine Level
Paula Ealey (assisted by Natalie Bieberdorf), BSW, RSW, Weyburn, SK
Breakout 4C - Support and Advocacy - ‘Once upon a time -the use of narratives with families
impacted by brain injury in a pediatric context’ Fountain Room
The Neuro Response Team, IWK Health Centre, Halifax Nova Scotia. Corinne Sauvé MSW, RSW and
Nancy Cashen BScN, RN.
Leslie Lloyd
Breakout 4D - Family/Survivor/Caregiver - ‘Embracing a “Normalized Life” after Severe Brain Injury:
The Possibilities are Endless Salon Room
Leslie Lloyd, Mary-Ellen Thompson, Ph.D. & Fahmida Pardhan- Belleville, ON
DAY THREE AM
Friday, September 28th, 2012
Vendredi, le 28 septembre 2012
9:00 - 10:00Keynote 1 – ‘Women living with acquired brain injury in Canada: Pilot study exploring the impact of
gender and sex on health and well-being.’ Panorama Room
Angela Colantonio, PhD, OT. (C), Toronto Rehabilitation Institute, University of Toronto, Toronto, ON
Dr. Angela Colantonio acknowledges the support of the
CIHR Institute of Gender and Health for this presentation.
ONF is committed to
10:00 - 10:15
Nutrition Break / Pause santé Panorama Room
10:15 - 11:00Breakout 1A – Research and Health Care Panorama Room Presented by
‘The Energy Model as a healing paradigm for brain trauma’
Dean Hugie, MED,RPSYC, Regina, SK
Anne Hunt
www.onf.org
Breakout 1B – Prevention and Education Mezzanine Level
‘Protective equipment: Why humans need it- the relationship between how humans play sport and
how helmets protect against head injury.’
Dr TB Hoshizaki, School of Human Kinetics, University of Ottawa
Breakout 1C – Support and Advocacy Fountain Room
‘The value of setting goals: benefits for brain injury survivors’
Anne Hunt, M.S O.T. Reg (Ont.), PhD (Candidate) -University of Toronto
11:00 - 11:15 Vincy Chan
research and its impact on
quality of life
for people living with
Acquired Brain Injury
Coffee/Water Break - Pause santé Panorama Room
ONF is committed to
research and its impact on
quality of life
for people living with
Acquired Brain Injury
11:15 - 12:00Breakout 2A – Research and Health Care Panorama Room Presented by
www.onf.org
‘Factors Associated with Discharge Destination from Acute Care Among Patients
with Acquired Brain
Injury in Ontario Canada’
Vincy Chan, MPH, PhD Candidate - University of Toronto and Toronto Rehabilitation Institute - UHN
Breakout 2B – Prevention and Education Mezzanine Level
‘Analysis of Concussion Prevention Protocols in Sport Organizations’
Sandhya Mylabathula, BSc Honours - University of Toronto, Toronto, ON
Breakout 2C – Support and Advocacy Fountain Room
‘Caring for a Brain Injured Person: What’s important and how professionals can help during the first
year following injury.’
Alanna Keenan, RN, MScN, Advanced Practice Nurse – Trauma,
Lynn Joseph, RN, MScN CNN(C), Advanced Practice Nurse, Ottawa, ON
Dr. Richard Volpe
Breakout 2D – Family/Survivor/Caregiver Salon Room
‘Reintegration Programs - Exemplary Evidence - Informed Programs that Foster Community
Participation - The outcome and examples of the world’s first comprehensive review and casing of
exemplary evidence informed programs that promote community participation after ABI.’
Dr. Richard Volpe, Toronto, ON
12:00 - 1:00LUNCH – Dîner L
UNCHEON SPEAKER AND WRAPUP- Dîner et retour sur la conference
Kirsty Duncan, MP for Etobicoke North, Ontario Southam Hall Foyer
Kirsty Duncan, MP
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Anju Aggarwal, RT
Anju Aggarwal is a Rehabilitation Therapist on the Behavioural Rehabilitation
Services which is a part of the Ottawa Hospital’s Acquired Brain Injury Program.
She has her B.A in Psychology and her diploma in Behavioural Sciences. She has
worked in the community in many different capacities. Currently her role as a case
co-ordinator involves being engaged in intense behavioural interventions, monitoring patients’ behaviours, implementing behavioural modification techniques
and conducting behavioural assessments and interventions with patients with
acquired and traumatic brain injuries.
Mona B. Allan, RN, MScN,
Ms. Mona B. Allan graduated from the University of Ottawa, School of Nursing in
2009 and received her Master of Science in Nursing in June 2012. She is a member
of the Registered Nurses Association of Ontario and member of Sigma Theta Tau International Honor Society of Nursing. Mona has clinical experience in an acute care
community hospital where she is a staff nurse and member of the Falls Prevention
Committee. Mona has actively volunteered as a sports trainer for many local clubs
over the past decade in support of her four children. Mona’s passion for concussion
awareness stemmed from her attendance at the Hockey Canada Concussion
Road Show in 2007. Educating athletes, parents, and coaches about concussion
assessment and management led to her Master’s project on concussion knowledge
translation to coaches and trainers of a local football club. In pursuit of minimizing
injuries to youth football athletes, Mona has written the policy and procedures
manual for concussion assessment and management which has recently been
distributed to local football clubs for their review. Mona also volunteers her time to
ThinkFirst Ottawa Chapter events to advocate for brain injury prevention.
Vlad Bartchouk
Vlad Bartchouk graduated from university in 1988 from the Faculty of Health
Sciences in St. Petersburg, Russia. He has been working in the field of acquired
brain injuries since 1994. Currently, he is a senior manager with Brain Injury
Services in Hamilton, ON and a manager of its Transitional Living Service. In
the past, Mr. Bartchouk presented at the variety of conferences of regional and
national caliber. Swimming is his other passion in life, as he completed the
crossings of the English Channel, the Gibraltar and Dardanelles Straits.
Miriam Beauchamp, PhD,
Dr Miriam Beauchamp est professeure adjointe en neuropsychologie développementale à l’Université de Montréal (Canada) où elle dirige le laboratoire de
neuropsychologie développementale ABC. Elle est aussi chercheuse au Centre de
recherche du CHU Ste-Justine et professeure adjointe au Département de neurologie et de neurochirurgie de l’Université McGill. Ses recherches, subventionnées par
les trois principales agences canadiennes fédérales (CRSH, IRSC, CRSNG) ainsi que
par les Fonds de recherche en santé du Québec (FRQS), visent essentiellement à
mieux comprendre le développement social et cognitif des enfants et adolescents.
Ses travaux se concentrent également sur les conséquences d’un traumatisme
craniocérébral survenu tôt dans l’enfance en utilisant des technologies et des
méthodes d’évaluation multi-modales. Ses recherches en neurosciences sociales
ont conduit à l’élaboration de mesures nouvelles au niveau de la cognition sociale
et de la fonction, particulièrement au niveau du raisonnement moral.
Dr Miriam Beauchamp is Assistant Professor in developmental neuropsychology
at the University of Montreal (Canada) where she leads the ABCs developmental
neuropsychology laboratory. She is also a researcher at the Ste-Justine Hospital
Research Center, and Adjunct Professor in the Department of Neurology and
Neurosurgery at McGill University. Her research is funded by three federal
Canadian agencies (NSERC, SSHRC, CIHR) as well as the Quebec Health Research
Funds (FRQS) and globally aims to better understand social and cognitive
development in children and adolescence. Her work also focuses on the
consequences of early brain injury using multi-modal assessment methods and
technologies. Her research in social neurosciences has led to the development of
novel measures of social cognition and function, in particular moral reasoning.
biographies / biographies
Dr Serge Bergeron
Dr Serge Bergeron a une formation de médecin de famille diplômé de l’Université
de Sherbrooke. Il s’est impliqué dans le développement de services gériatriques et
de réadaptation interdisciplinaire en déficience physique (CSSS Domaine- du-Roy
de Roberval), dans la création du CRDP Le Parcours (CSSS de Jonquière) et dans la
mise en place d’une URFI gériatrique (CSSS Cléophas- Claveau de La Baie).
Au CSSS de Chicoutimi depuis 2001, il est directeur adjoint des services
professionnels depuis 2007. Il agit comme médecin-conseil au programme de
neurotraumatologie. Il est d’ailleurs membre du comité des médecins-conseils en
neuro- traumatologie du Québec depuis 2003. Professeur d’enseignement clinique
au programme de formation médicale à Saguenay, il s’est aussi impliqué dans les
stages d’enseignement aux CSSS de La Baie et de Roberval.
Dr. Serge Bergeron, family doctor who graduated from the University of
Sherbrooke, has been involved in the development of the geriatric and physical
rehabilitation services (CSSS Domaine du Roy de Roberval), in the development
of the CRDP Le Parcours (CSSS de Jonquière) and the establishment of a geriatric
functional rehabilitation unit (CSSS Cléophas-Claveau de La Baie). At the CSSS de
Chicoutimi since 2001, he is the director of the professional services since 2007.
He acts as a medical adviser on the Neurotrauma Program. He is also a member
of the Neuro-traumatology Medical Adviser Committee of Quebec since 2003.
Clinical Professor in the Medical Education program in Saguenay, he was also
involved in the internships at the CSSS de La Baie and of Roberval.
Leslie Birkett
Leslie Birkett graduated from Queen’s University in 1987. She has worked for
over 20 years in brain injury rehabilitation with both children and adults in
settings ranging from acute care to the community. Leslie has operated her own
private practice since 1995. In addition to her clinical work, Leslie is a Professional Associate in the McMaster University School of Rehabilitation Science,
Occupational Therapy program in Hamilton, Ontario. Leslie is the co-author
of the I CAN assessment which is a community based evaluation of executive
functioning. Leslie enjoys collaborative community based rehabilitation using
a “Participate to Learn” approach. She thrives on situations that challenge her
creativity and use of best practices and strives to assist her clients with meeting
their personal life goals.
Dr. Kathryn Boschen
Dr. Kathryn Boschen holds a PhD in Social Psychology from York University. She
has Associate Professor Status at the University of Toronto in the Department of
Occupational Science and Occupational Therapy, and in the Graduate Department of Rehabilitation Science. She is also a Scientist with the Bridgepoint
Health Collaboratory for Research and Innovation in Toronto. Dr. Boschen has
researched and written on topics in brain injury and spinal cord injury related to
community integration and quality of life of adults with neurotrauma. These include social and environmental obstacles, housing and employment challenges,
community-based rehabilitation, and case management. She also writes on
the importance of family and peer support, caregiver burnout, self-directed
attendant care, secondary health complications, and long-term adjustment
issues. Today Kathy and her colleague Judy Gargaro will be discussing the results
of an external evaluation they conducted of a province-wide Ontario Brain Injury
Association Peer Mentoring Support Program. The three-year evaluation was
funded by the Ontario Neurotrauma Foundation.
Kristin Bouma, BA,
Kristin Bouma received her bachelor of arts degree in psychology from Dordt College, Sioux Centre, Iowa and obtained the rehabilitation therapist certification
from McMaster University, Hamilton, Ontario. Kristin has been a case facilitator
for Brain Injury Services, in the outreach program for six years. Kristin is a past
program manager for a residential program for individuals with developmental
disabilities. Kristin has presented numerous provincial and national conferences.
Larry Carlson,
Colleen Butler, B.A., C.R.C.
Larry Carlson has worked for the province of Saskatchewan as a Special Education Consultant and as Disability Programs Manager where he designed and
delivered the Employability Assistance for People with Disabilities Program. He
currently manages grants for post-secondary students with disabilities. He has
also been a sessional lecturer in Special Education at the University of Regina.
In November 1992, Larry was in a car crash and felt fortunate to seemingly have
escaped injury. Symptoms developed, however, that led to surgery for a subdural hematoma about a month after the crash. He lives with some on-going
effects of the injury and has spoken to audiences and individuals across Canada
regarding living with a brain injury.
He has served as President of the Saskatchewan Brain Injury Association
where he continues active participation on the Board. He is also a member of
Saskatchewan Government Insurance’s Acquired Brain Injury Partnership Project
Advisory Group. He has been President of the Brain Injury Association of Canada
since October, 2010.
Larry and his wife, Stephanie, live on a farm near Regina. They have three adult
children and five grandchildren.
Sharon Campbell Rayment, Reg.N., B.Sc.N., M.Div.
Nancy Cashen, RN, BScN,
Colleen Butler is an entrepreneur and business women. Her home construction
company was thriving until May 2, 2007 when after a quick trip home for lunch
changed her life abruptly.
Colleen’s dynamic style of presentation is warm, funny and compassionate. She
speaks with common sense, practicality and from the heart with first hand experience of living/recovering from a head injury. Brain Navigators offers practical
holistic approach to recovery from this ugly “silent injury”.
4 years ago Sharon Campbell Rayment suffered an ABI as a result of a horseback
riding accident. Sharon has implemented a number of strategies on her road to
healing, yet one of the most unique and effective was her work with horses in
a new way! Working with horses from the ground rather than in the saddle has
given Sharon new insight and perspective into the world of horses and their
ability to work beside us, heal us and expand our awareness through Equine
Experiencial Learning. Horse’s as teachers are fun, transformational and help us
develop long lasting healing, wellness and insight. Research supports this work
for numerous healing modalities and therapy, and as Sharon shall present, ABI
healing as well. Sharon is a nurse with her Bachelor of Science in Nursing, as
well as, her Master’s in Divinity. She has proceeded step by step to emerge from
the restrictions of her ABI which profusely affected her life.
Nancy is a graduate of Dalhousie University and will be graduating fall of 2012
with her Masters in Nursing. Nancy has worked in pediatrics throughout her 14
year nursing career. After commencing graduate studies, Nancy accepted an advanced nursing role on the Neuro Response Team in 2009. The Neuro Response
Team works with children, youth and families with Acquired Brain Injuries. It is
a multidisciplinary team consisting of a Physician, Social Worker, Occupational
Therapist, Physiotherapist, Speech-Language Pathologist, Dietician and Child
Life Specialist. Nancy supports and co-ordinates care delivered to the family in
both the acute phase and transition into the community.
biographies / biographies
Vincy Chan
Vincy Chan is a PhD candidate in the Graduate Department of Rehabilitation
Sciences at the University of Toronto. Under the guidance of Dr. Angela
Colantonio, she has made contributions to the Ontario Acquired Brain Injury
Dataset Project, which is the first comprehensive surveillance system that
combines brain injury from both traumatic and non-traumatic causes across the
continuum of care.
Jennifer Cobersky
Jennifer Cobersky is the Regional ABI System Navigator for the Northeast and
co-chair of the Northeast Brain Injury Network. She has worked with the
Ontario March of Dimes Acquired Brain Injury Program for 12 years on the
front line as well as in team lead and coordinator roles. She has been in
the role of System Navigator for two years and has since re-established the
Northeast Brain Injury Network. With an undergrad degree in Psychology and
having just finished up a Masters degree in Business Administration, she
strives to contribute to making the system work more effectively for
individuals with acquired brain injury in Northeastern Ontario.
Angela Colantonio
Angela Colantonio is a Senior Research Scientist at Toronto Rehab, where she
holds the Saunderson Family Chair in Acquired Brain Injury Research.
She is also a Professor at the University of Toronto. Dr. Colantonio has studied
the epidemiology of disability in older people with acquired brain injury,
dementia and stroke. Her current focus is on aging and acquired brain injury,
with a focus on sex and gender issues. She has a PhD in Epidemiology and
Public Health from Yale University, an MSc in Community Health and a BSc in
Occupational Therapy, both from the University of Toronto. She has published
and presented frequently.
Dr Jehane Dagher
Dr Jehane Dagher est professeure adjoint de clinique en Médecine Physique et de
Réadaptation (MP&R). Elle est médecin traitant auprès de la clientèle atteinte d’un
traumatisme craniocérébral (TCC) à l’Institut de réadaptation de Montréal, elle est
physiatre consultante au programme TCC à l’Hôpital général de Montréal. Elle est
auteure et co-auteure de plusieurs articles sur le TCC.
Dr Dagher détient un diplôme de premier cycle universitaire en physiothérapie
de l’Université McGill. Elle a par la suite accompli, avec honneurs, des études en
médecine avec spécialisation en MP&R à l’Université de Montréal. Elle a enfin obtenu
une sur-spécialisation en neuro-réadaptation à l’Université de Toronto.
Dr Dagher est à la fois membre du Collège royal des médecins et chirurgiens du
Canada et du American Board of Physical Medicine and Rehabilitation.
Dr Jehane Dagher is an assistant clinical professor in Physical Medicine and
Rehabilitation with sub-specialization in TBI. She is a consultant physiatrist on the
Traumatic Brain Injury program at the Montreal General Hospital. She is a treating
physician on the TBI floor at the Institut de Readaptation de Montreal. She has
authored and co-authored several articles on TBI.
Dr. Dagher completed her undergraduate degree in Physical Therapy at McGill
University. Her Medical Degree and specialization were accomplished with honors
at Université de Montréal. And her sub-specialization in neuro-rehabilitation at
the University of Toronto.
Dr. Dagher is both a fellow of the Royal College of Physicians and Surgeons of
Canada and of the American Board of Physical Medicine and Rehabilitation.
Dr. Claude Dubé, PhD
Dr Claude Dubé a reçu un doctorat en psychologie de l’Université de Montréal
comprenant une formation en neuropsychologie. Suivant sa formation, il a pratiqué la
neuropsychologie clinique et la psychologie clinique au département de psychiatrie du
centre hospitalier régional de Baie Comeau. Il a par la suite pratiqué au département de
psychiatrie du centre hospitalier de Roberval au Lac-Saint-Jean dans une équipe de psychogériatrie, de même que brièvement au centre de réadaptation physique de Jonquière.
Depuis quelques années, il occupe un poste de professeur en neuropsychologie clinique
au Département des sciences de la santé à l’Université du Québec à Chicoutimi. Il se concentre sur la formation pratique en neuropsychologie des étudiants au doctorat clinique.
Son intérêt à la fois clinique et scientifique envers les personnes victime de traumatisme
crânien s’est maintenu durant toute sa carrière à la fois de praticien et universitaire.
Dr. Claude Dubé obtained his PhD Degree in psychology at the University of Montreal,
including a specialisation in neuropsychology. He practiced clinical neuropsychology
and psychology at the Psychiatry Department of the Centre hospitalier régional de
Baie-Comeau. He joined after the Psychiatry Department of the Centre hospitalier
de Roberval (Lac-Saint-Jean) in a psychogeriatric team, and also at the Jonquière
Rehabilitation Centre. He is alsoa professor in clinical neuropsychology in the health
care department at the University of Quebec at Chicoutimi. He focuses on the training
of PhD Students on clinical neuropsychology. His interest in both clinical and research
on persons who have a brain injury, was sustained throughout his practitioner and
academic career.
Dr. Kirsty Duncan, MP
Dr. Kirsty Duncan is the Member of Parliament for Etobicoke North, and an Associate Professor (on-leave), Health Studies, University of Toronto at Scarborough.
She is also the former Research Director, AIC Institute of Corporate Citizenship,
Rotman School of Management, and formerly an Associate Professor, Geography, University of Windsor. She is also an international speaker, who has lectured
for such organizations as National Geographic, the Japanese Government, and
the Young Presidents Organization.
Dr. Duncan completed work, regarding climate change and human health
for North America, for the Intergovernmental Panel on Climate Change, a
joint venture of the United Nations Environmental Programme and the World
Meteorological Organization. She was recognized on Parliament Hill in 2008 for
her contribution to the Nobel-Prize winning Canadian team on the IPCC.
In 2012, she was recognized with the Pioneer in Healthcare Policy Award from
the Society for Brain Mapping and Therapeutics, and in 2009 was recognized
in India with the Knowledge Millennium Award for her work in pandemic
influenza.
Dr. Christine Durham
Christine writes and speaks about coping and growing through the challenges
of brain injury – how she found her ‘feet’, her words and her thoughts. Author
of “Chasing Ideas” (Finch Publishing) and “Doing Up Buttons” (Penguin Books,
Australian Academic Press) which bring to life her experiences of learning to
put her life together after her car accident. She has recently completed a PhD
searching for the good news about brain injury - the things that people with
brain injury can do to help themselves feel and fare better.
Using the analogy of brain injury imprisoning the person, she used an actual
bird cage and called it the ‘Acquired Brain Injury (ABI)Cage’ – to encourage
participants to talk about their brain injury experience and identify all the ‘Keys’
that released them from the ‘ABI Cage’.
There are many ‘Keys’ that open the ‘ABI Cage’, and the impossible can happen
– pigs can fly.
biographies / biographies
Paula Ealey, BSW, RSW
Paula is a Registered Social Worker who is the Regional ABI Coordinator for
Sun Country Health Region in Saskatchewan. She works with moderate to
severe brain injured clients who are returning home to their community. She
has a wide variety of clients from 16 to 80 years of age. Paula is involved with
individual and family counselling, and education as well as facilitating support
groups. The Medical Scooter program was initiated through one of the support
groups based on identified needs by the survivors in the group.
Patti Flaherty
Patti Flaherty is the Executive Director of CONNECT. She has been working with
people with disability, in a variety of positions in the field of rehabilitation and
health services for over 20 years. She started her career in the brain injury field
in Ontario and for the past 15 years she has worked in British Columbia. Patti’s
career has developed to include leadership, integrated thinking, coaching and
people development which is the perfect fit and focus for her role at CONNECT.
Connect Communities provides the adaptive framework and constant curiosity
necessary for people to redesign their realities after brain injury. Patti is also the
chairperson for the board of directors that is responsible for the Pacific Coast
Brain Injury Conference Society and www.brainstreams.ca.
E. Aiofe Freeman, MSc.,
E. Aiofe Freeman is an MSc. Counselling Psychology Student with the University of Calgary. She has a strong interest in the role of counsellors working with
persons with acquired disability issues, interprofessional collaboration, and
ethical practices.
Judy Gargaro, B.Sc, MEd
Judy Gargaro has a B.Sc. degree with a double specialist in psychology and
physiology and a M.Ed. in Applied Psychology and Counselling from the
University of Toronto. She has worked as a Research Coordinator on numerous
projects over the last 20 years at Surrey Place Centre, Holland Bloorview Kids
Rehabilitation Hospital, Toronto Rehabilitation Institute, University of Toronto,
West Park Healthcare Centre, Toronto Central CCAC, and CHIRS (Community
Head Injury Resource Services) in the areas of developmental delay, cerebral
palsy, mental health, diabetes, spinal cord injury and in particular brain injury.
Judy has extensive research experience co-ordinating and managing different
projects and has many published manuscripts in peer-reviewed journals. Her
research interests are in the area of neurotrauma, specifically ABI, and issues
relating to adjustment, community living, the way supportive services are
delivered to and perceived by consumers and their families, the effectiveness of clinical interventions, and the clinical and research utility of outcome
measures.
Jérôme Gauvin-Lepage
Clinical nurse specialist at the Jewish Rehabilitation Hospital in Laval, doctoral
candidate and lecturer in the Faculty of Nursing at the University of Montreal,
he is also a student member of Quebec rehabilitation research network and of
the Centre for interdisciplinary research in rehabilitation of Montreal. His main
research fields focus on social participation of people who have had a traumatic
brain injury and the interventions facilitating resilience of family members.
Conseiller clinicien en soins infirmiers à l’Hôpital Juif de Réadaptation de Laval,
candidat au doctorat et chargé de cours à la Faculté des sciences infirmières de
l’Université de Montréal, il est aussi membre étudiant du Réseau provincial de
recherche en adaptation-réadaptation et du Centre de recherche interdisciplinaire
en réadaptation du Montréal métropolitain. Ses principaux champs d’intérêts de
recherche portent sur la participation sociale des personnes ayant subi un traumatisme craniocérébral et les interventions favorisant la résilience de leurs proches.
Guylaine Gobeil
Détentrice d’un baccalauréat en sciences infirmières del’université du Québec à
Chicoutimi, Mme Gobeil a occupé le poste d’infirmièrepivot au sein de l’équipe
interdisciplinaire du Programme de traumatologie de 2005 à 2010 après
avoiracquis de l’expertise en soins critiques généraux et neurologiques. Elle
acontribué au développement du modèle régional de prise en charge pour
lesvictimes d’un TCC léger. Depuis 2010 elle est conseillère en soins infirmiers àla
Direction de la qualité, des soins infirmiers et des servicesmultidisciplinaires pour
le volet de la traumatologie. Elle continue desoutenir l’équipe interdisciplinaire
par le développement de nouveaux outils etle rehaussement des compétences.
Elle joue également un rôle de préventionprimaire et secondaire auprès de la
population de sa région.
Holder of a Bachelor degree in Nursing at the University of Quebec at
Chicoutimi, Ms. Gobeil was a nurse pivot within the interdisciplinary team of
the Trauma Program from 2005 to 2010 after gaining expertise in general and
neurological critical care. She developed, in collaboration, the regional model
of care for the victims of a mild traumatic brain injury. Since 2010, she has
been a nursing consultant at Quality, Nursing and Multidisciplinary Administration, particularly in trauma. She continues to support the interdisciplinary
team in developing new tools and skills enhancement. She also plays a role of
primary and secondary prevention among the population of her region.
Cristy Hayden
As a vibrant young adult, at 24 years of age Cristy was injured in a severe car
crash, resulting in her lying in a coma for a week. She awoke to learn that
everything had changed: She couldn’t walk, she couldn’t talk, and she couldn’t
return to the job she was dedicated to. Miraculously, she fully recovered from her
injuries. She has since run two half-marathons, competed in speech contests,
presented at career development conferences, completed a master’s degree, and
works in a leadership position she loves.
Jennifer Hopper
Prior to her acquired brain injury in early 2010, Jennifer worked as a financial
planner for 24 years. While the injury has eliminated returning to her profession
she continues to search for her next career and spends her time, as she calls it,
“working on her masters of personal rehabilitation”.
Jennifer actively volunteers at the Ottawa Rehabilitation Centre to whom she
owes a great deal. She lends support to patients and works with staff to develop
processes to facilitate a positive transition from acute care to community.
It is Jennifer’s goal to build a tighter bond between all facets of the community
to better receive and serve the ABI survivor.
biographies / biographies
T Blaine Hoshizaki Associate Professor, Vice Dean
School of Human Kinetics, University of Ottawa
Prior to entering private business Blaine Hoshizaki was employed as a professor
for fifteen years at the Universities of Victoria, Lakehead and McGill. He left the
university environment to enter the sporting business in the early nineties and
subsequently decided to return to academics the fall of 2004 in the School of Human Kinetics in Ottawa. His academic and business administrative experiences
provide a foundation to support the challenges faced in the Directors position.
Recently his research has primarily focused on understanding the mechanism
of head injuries in sport. His research involves establishing better criterion
variables to apply in developing more accurate injury models. He is also involved
in research directed at identifying the injury risk and mechanism of injury to all
parts of the body during sporting activities. He presently sits on the American,
Canadian and European standards committees for sport equipment and chairs
the International Standard Committee for ice hockey equipment. He participated
on the NHL Advisory Panel for the reduction of injuries in the NHL.
Dean Hugie, MED, APE, CRHSPP
Dean Hugie MED, APE, CRHSPP, is a registered (health) psychologist currently in
private practice in Regina, Sask. Over the past number of years, he has worked
as a consultant to the Saskatchewan Sport Medicine and Science Program, a
learning specialist SIAST and Counseling Psychologist. In 2006, Dean began
complementing his work with energy principles. He continues to develop
expertise in these areas.
Anne Hunt
Anne Hunt is currently a PhD candidate in the Graduate Department of Rehabilitation Science at University of Toronto and the Rotman Research Institute. She
holds a Bachelor of Science in psychology from McGill University and her Master’s Degree in Occupational Therapy from Columbia University in New York City.
Anne is the recipient of a prestigious Doctoral Research Award (Occupational
Therapy in Mobility & Aging) from the Canadian Institute of Health Research, the
Beverley Jackman Award from the Canadian Federation of University Women,
and an Ontario Research Coalition Early Researcher Award. Her dissertation
work has been presented at several major brain injury conferences including the
International Brain Injury Association’s World Congress in Scotland (March 2012).
Anne is also an occupational therapist whose research interests include: goal
setting and strategy training for individuals with executive dysfunction from
acquired brain injury or the aging process; and the influence of causal beliefs
and executive functions on self-regulation in every day life activities.
Cheryl Jones, MMT, NMT‐F,
Cheryl Jones MMT, NMT‐F, works as a music therapist in both palliative care and
in brain trauma. She holds her Masters of Music Therapy from Wilfrid Laurier
University. She has advanced training in Neurologic Music Therapy from the
Bio‐medical Research Centre at Colorado State University. She is a fellow of
the Robert F. Unkefer Academy of Neurologic Music Therapy, is a member of
the Network of Neurologic Music Therapists, and of the International Society
of Clinical Neuromusicology. Cheryl is a researcher for the Manfred and Penny
Conrad Institute for Music Therapy Research. She currently resides in Ottawa,
Ontario where she maintains a private practice Con Brio Music Therapy. She may
be contacted at: [email protected].
Lynn Joseph
Lynn Joseph is currently the Advanced Practice Nurse for the Restorative
Program at Bruyère Continuing Care – Saint Vincent’s hospital, a complex
care facility in Ottawa. Lynn’s role encompasses the management of patients
who require low intensity and long duration rehabilitation, including those
with multi-system traumatic injury, and stroke. She was formally in the acute
care neuroscience setting for the past 37 years, with education and research
utilization initiatives to support neuroscience patient care. She teaches the
neuroscience portion of the Critical care Program at Algonquin college Continuing Education Program and is a research assistant with the Ottawa Hospital
Research Institute.
She has presented at numerous conferences at a regional, provincial, national
and international level. She is the Co- Investigator of the research study “The
needs of family members of severe brain injured patients” for which she has
received a number of research funding awards.
Alanna Keenan
Alanna Keenan has been the Trauma Advanced Practice Nurse for a Level 1
tertiary care hospital in Ottawa, Canada for the past 12 years. Alanna’s role
encompasses the management of patients with multi-system traumatic injury,
in addition to developing programs and leading education and research initiatives to optimize the care of trauma patients and families. She has a Joint appointment with the School of Nursing at the University of Ottawa and teaches/
supervises students in the MScN program.
She has presented at numerous conferences at the provincial, national and
international level. She is the Principle Investigator of the research study “The
needs of family members of severe brain injured patients” for which she has
received a number of research funding awards.
Samar Khoury, PhD(c)
Samar a obtenu un Baccalauréat en Sciences (Biologie cellulaire et moléculaire)
de l’Université Concordia (Montréal, Canada) en 2004. Elle a par la suite complété
une Maîtrise en sciences (Sciences neurologiques) à l’Université de Montréal
(Montréal, Canada) durant laquelle elle a étudié les désordres respiratoires associés
au bruxisme du sommeil. Samar est présentement candidate au programme de
doctorat en sciences neurologiques de l’Université de Montréal ; elle travaille sous
la supervision du Dr Gilles Lavigne et du Dr Guy Rouleau. Ses projets portent sur les
prédispositions génétiques associés aux troubles du sommeil, aux traumatismes
crânio-cérébraux légers et à la douleur. Elle est boursière des Instituts de Recherche
en Santé du Canada - F. Banting and C. Best.
Samar obtained a Bachelor Degree in Sciences (cellular and molecular biology)
from Concordia University (Montreal, Canada) in 2004. After, she completed her
Master degree in neurological sciences at the University of Montreal (Montreal,
Canada) during which she studied the respiratory disorders associated with
sleep bruxism. Samar is currently a PhD candidate in neurological sciences at the
University of Montreal; her supervisors are Dr. Gilles Lavigne and Dr. Guy Rouleau. Her research field focus on genetic predispositions associated with sleep
disorders, brain injury and mild pain. She is a Fellow of the Canadian Institutes
of Health Research - F. Banting and C. Best.
Victoria Leck, RDH, BHA
Victoria has 21 years of experience as a dental hygienist, with 18 of those spent
in public health. She has also been a faculty member at the Canadian Institute
of Dental Hygiene. She is a graduate of the dental hygiene program at Canadore
College and holds a bachelor of health administration from Ryerson University.
She is currently enrolled in the masters of health management program at
McMaster University.
Victoria has been actively involved in the Ontario Association of Public Health
Dentistry, holding positions on the executive including member at large, secretary and president as well as co-chairing the health promotion and advocacy
committee for several years. Victoria is currently the manager of professional
development at the Canadian Dental Hygienists Association.
biographies / biographies
Jennifer Lemke CRRN
Jennifer is a registered nurse who has worked for the last 20 years in several
Acute Rehabilitation Facilities in Canada and the United States. She currently
works in Ottawa on an Acquired Brain Injury Unit assisting clients during their
recovery and return to community. She received her certification in Rehabilitation in 1996.
Leslie Lloyd
Leslie Lloyd is a survivor of a severe brain injury. Prior to her injury, Leslie was
a young married woman, starting her career, enjoying family and friends, and
life held many possibilities. In 2003, Leslie’s life changed dramatically when she
was involved in a serious motor vehicle accident. She was given little chance of
survival but Leslie persevered. Not only did she survive, but she survived with
dignity and now is raising a family of two children with the assistance of her
husband and family.
Bruce A. Linder, Ph.D., C. Psych., BCBA-D
Dr. Linder received his Ph.D. in 1985 from McMaster University in Experimental
Psychology (Developmental). He interned at the Behavioural Medicine Unit at
St. Joseph’s Healthcare in Hamilton, Ontario and at the Hamilton Board of Education in 1984-1986. He has been registered with the College of Psychologists of
Ontario since 1986, is a Board Certified Behavior Analyst - Doctoral level and is
a member of the Canadian Register of Health Service Providers in Psychology
(CRHSPP). He co-founded the private practice of Pryor, Linder and Associates in
Oakville with Dr. Colin Pryor in 1985. Dr. Linder is a Director with Safe Management Group Inc.
Dr. Linder’s designated area of specialization is rehabilitation psychology. He
is currently Clinical Director at Brain Injury Services of Hamilton, consulting
behavioural psychologist to the Acquired Brain Injury Program at CMHS of St. Joseph’s Healthcare, Hamilton and consulting psychologist to the Niagara Catholic
District School Board. He is also Adjunct Assistant Professor in the Department of
Psychology, McMaster University.
Current and past research interests have included program evaluations of
school-based violence prevention programs, individualized and group remedial
educational programs with learning disabled children, conflict resolution
training with adults with acquired brain injury, cognitive behavioural therapy
groups in anger management and depression among adults with acquired
brain injuries, determinants of quality of life for community-integrated adults
with acquired brain injuries, and caregiver styles among service providers for
developmentally disabled adults.
Ian McCallum
Ian Powell McCallum is author of From Grave to Cradle to Now. He has been CEO
of various enterprises, entrepreneur, assistant to a federal Cabinet Minister,
management consultant and president of a national practice group for a major
international accounting and consulting firm. He has given numerous addresses
including to industry, investment and human resources conferences, law and
business schools, as well as addressing committees of both Houses of the US
Congress. At the recent family celebration of his injured son’s birthday, Ian and
his wife celebrated 99 years of parenting.
Liana McLeod, B.A., R.T.
Liana received her bachelor of arts, honours degree from Brock University in
St. Catharine’s, Ontario and obtained a rehabilitation therapist certificate from
McMaster University in Hamilton, Ontario.
Liana has worked in the field of ABI since 1996 as a case facilitator and presently
works as a research assistant at Brain Injury Services. Liana conducts psychometric testing and coordinates annual research projects at Brain Injury Services in
conjunction with McMaster University.
Toba Miller, RN, MScN, MHA, GNC(C), CETN(C)
Toba Miller has been working in the health care for more than 20 years. Currently
she is the Advanced Practice Nurse for Wound, Ostomy and Rehab at an urban
academic hospital. Her portfolio includes clinical practice, research, education and
administration. Toba has a varied background which includes experience working
in the community, acute care, long term care and complex continuing care as a
clinician staff nurse, manager, research assistant and clinical scientist.
Toba graduated from the University of Ottawa with a baccalaureate in Nursing
Science Magna Cum Laude and went on to obtain her Master of Science in Nursing
and Master of Health Administration. She holds a joint-appointment with the University of Ottawa School of Nursing. Throughout her career she has been active in
several professional associations and most recently she completed her term as the
President of the Ontario Association of Rehabilitation Nurses. She is the recipient of
several research grants and has presented her work nationally and internationally.
Frank Murphy and Jeff Chartier
Frank Murphy was born in Ireland before being raised and educated in Ottawa,
Ontario. He has a Bachelor of Arts (Psychology) from Carlton University and
have been living in the Durham Region for the past 34 year. Frank has been
working for the Brain Injury Association of Durham Region as Executive Director for the past 21 years.
Jeff Chartier has been employed with the Brain Injury Association of Durham
Region since 2005. He has a Bachelor of Arts from Trent University and has
been working in the social services field for the past 11 years. Jeff has a
diverse employment history with experience in brain injury, adult literacy,
corrections, youth services, and rehabilitation. He began working on this
project in 2008 and has been in the sole staff role of the Transitional Support
Initiative since August 2009.
Frank and Jeff began the work of this initiative in 2008 and have been involved
in all aspects of designing and implementing the project.
Lisanne Mitts
Lisanne Mitts is a Community Rehabilitation Counselor for the Brian Injury
Outreach Service at Providence Care, Belleville office and maintains a private
practice specializing in pediatric brain injury services. She provides Rehabilitation, Educational and Case Management services to children and young adults
with Acquired Brain Injuries in the Quinte, area. She is a former Board member
of the Brain Injury Association Quinte District and continues to work as a
volunteer for this association as well as being formerly on the Board of Directors
of Loyalist College.
Swapna Mylabathula
Swapna Mylabathula is a student at the University of Toronto, and has each
achieved an Honours Bachelor of Science with High Distinction in Human
Biology and Nutritional Sciences. She has just completed a year enrolled at the
Faculty of Kinesiology and Physical Education at the University of Toronto, where
she participated in various courses including research on sports concussions.
Swapna presented a Private Member’s Bill proposal on concussions in Canada at
the 8th annual BIAC conference with Sandhya Mylabathula, for which they were
recognized as two of the fifty most influential Torontonians for 2011. This Private
Member’s Bill was developed with advice and valuable input from Member
of Parliament Dr. Kirsty Duncan, BIAC Executive Director Mr. Harry Zarins, and
University of Toronto professor Dr. Lynda Mainwaring. She has worked with Dr.
Lynda Mainwaring at the University of Toronto on this current project, and looks
forward to further study in this area.
biographies / biographies
Sandhya Mylabathula
Sandhya Mylabathula is a student at the University of Toronto, and has achieved
an Honours Bachelor of Science with High Distinction in Human Biology and Nutritional Sciences. She is currently enrolled at the University of Toronto’s Faculty
of Kinesiology and Physical Education, furthering her contributions to research.
She has been involved in concussion-related research initiatives, including the
co-development of a Private Member’s Bill proposal on a concussion strategy
with Swapna Mylabathula with valuable advice and input from Member of
Parliament Dr. Kirsty Duncan, professor Dr. Lynda Mainwaring, and Mr. Harry
Zarins, the executive director of the Brain Injury Association of Canada [BIAC],
and has presented this work with Swapna at the 2011 BIAC conference and 2012
International Brain Injury Association’s World Congress among others. The Bill
proposal also resulted in Sandhya and Swapna’s recognition as two of the top
50 influential Torontonians for 2011 by Grid TO magazine. Sandhya’s interest
in concussion research led her to continue with another research project with
her research advisor, Dr. Peter Donnelly, at the University of Toronto regarding
prevention protocols in sport organizations. She hopes that the research that has
been conducted can make a real difference in addressing the need for improved
concussion prevention for athletes.
Alicia Nichols
Alicia Nichols is the Acquired Brain Injury (ABI) System Navigator for the North
Simcoe Muskoka (NSM) ABI Collaborative. Alicia has over 15 years of experience in
the ABI sector. Her ABI career started as a community Case Manager. She went on
to supervise various programs such as ABI Community Outreach and ABI Supportive Housing. Previous to becoming the ABI Navigator for NSM, she held a senior
leadership position overseeing all the Attendant Care and Acquired Brain Injury
Programs in York Region and Simcoe County for a large Community Support Service agency. Her seasoned experience both at the front line and at the leadership
level have given Alicia many years experience to contribute to the system –level
improvements which are a primary focus of the System Navigator position.
Alison Nicholson
Alison comes with over 20 years’ experience in the field of acquired brain
injury, fulfilling many different roles from frontline in a group home to her current role as Manager, Community Services at Brain Injury Services. As Manager
of Community Services Alison is responsible for admissions to the agency, as
well as outreach services and the agency’s recreation and leisure program.
Alison also oversees a partnership that Brain Injury Services has with the
Alzheimer Society and CNIB in Haldimand County. Brain Injury Services assists
adults living with a brain injury in Hamilton, Burlington, Branford, Haldimand
and Norfolk Counties (these counties are along the north shore of Lake Erie).
Anyone who is a motorcycle fan will know Friday the 13th in Port Dover.
In Alison’s current role she saw clients wanting to return to work but often not
getting the job they applied for or once securing a job, not retaining it for very
long. This promoted the question, why and what can be done.
Loretta Norton
I am currently a PhD student in Dr. Adrian Owen’s laboratory in the Brain and
Mind Institute at the University of Western Ontario, London Ontario. Our laboratory uses functional neuroimaging to understand the effects of brain injury in
order to improve diagnosis and early detection and to find possible new treatments. I am particularly interested in neuroimaging tools that may be able to
assess recovery of consciousness in coma patients. While neuroimaging studies
have been carried out in chronic disorders of consciousness such as vegetative
state little is known about brain function in the acute phase of coma. Studies of
the brain in this acute phase may show brain activity patterns that may be an
early predictor or cue for the recovery of consciousness.
Fahmida Pardhan
Fahmida Pardhan attended The University of Western Ontario where she
completed an Honors Bachelor of Science. After completing her first
undergraduate degree, Fahmida completed a Masters of Arts in Speech and
Language Pathology at Wayne State University. Fahmida completed her certification mentorship under Mary Ellen-Thompson and is working in Toronto,
Ontario where she works primarily with individuals with Traumatic Brain
Injuries. Fahmida hopes to continue working in a rehabilitation setting.
Veronica Pepper, B.A Hons Psych, MRC
Veronica Pepper has been the Acquired Brain Injury System Navigator for the
Hamilton Niagara Haldimand Brant Local Health Integration Network in Ontario
since its inception in September 2010. The majority of her career was as a Community Intervention Coordinator with the Hamilton Health Sciences Acquired
Brain Injury Crisis Management Team for 13 years where she coordinated
the treatment and care of the most complex ABI cases across the province of
Ontario. Prior to the Hospital she was the Program Director for 4 years at Ontario
Independent Living Services, a 10-bed ABI residential facility and day program.
Currently Veronica is the Lead of a project funded by the Ontario Neurotrauma
Foundation.
“Piloting the Process of Systems Change Through Collaboration Between the
Mental Health and Acquired Brain Injury Sectors in Brant” is a 2 year project that
is identifying and examining the processes that enable, support and organize
cross sector knowledge transfer and collaboration among the brain injury and
mental health service providers in the Brantford, ON region.
She is also Co-Chair of the Provincial Acquired Brain Injury Network (PABIN).
Veronica is a graduate of the University of Waterloo, ON and her post-graduate
studies continued at Mohawk College of Applied Arts and Technology and
McMaster University in Hamilton, ON.
Cathy Rebella
Cathy began her varied career in the health care industry as an occupational
therapist after graduating from the University of Wisconsin - Madison. While
living in Wisconsin, she worked for 5 years in multiple rural school districts. She
became a director of a full continuum of rehabilitation care in Michigan. Cathy
first started with CARF as a surveyor in 1995. She has served as CARF Resource
Specialist in Medical Rehabilitation since 2007. Cathy has supported and worked
with organization’s seeking CARF accreditation both nationally and internationally, in an effort to promote and interpret standards and the use of accreditation
as a quality business strategy throughout the continuum of care.
Anna Reid, MD, CCFP-EM
Anna Reid was born in 1958 in Nairobi, Kenya, and moved at age six to
Dundas, Ontario. Childhood family trips to the University of Toronto Anatomy
Lab to visit her great-uncle Dr. John Grant sparked an interest in medicine. In
1981 she received an honours degree in wildlife biology from the University of
Guelph and in 1986 her medical degree from the University of Ottawa. In 1988
she completed her family practice residency (rural stream) through the University of British Columbia, spending the second year in remote Bella Coola, BC.
In 2000 she returned to Vancouver to complete further critical care and trauma
training.
Sharon E. Robertson
Sharon E. Robertson is Professor and Director of Training, Counselling Psychology
Program, the University of Calgary, Calgary, Alberta. She has particular interests
in counselling psychology, counsellor education and supervision, psychosocial
transitions, resiliency, grief and loss, and social support.
biographies / biographies
Corinne Sauve, MSW, RSW
Corinne is a graduate of Dalhousie University and University of Calgary. She has
worked with children and youth with disabilities most of her social work career
- in non profit, education and health settings. She is the Clinical Social Worker
for the Neuro Response Team who sees children age 0 – 16 with Acquired Brain
Injuries. Corinne works within a multidisciplinary team consisting of a Physician,
Nurse, Occupational Therapist, Physiotherapist, Speech-Language Pathologist,
Dietician and Child Life Specialist. She works with families in the acute stages of
ABI as well as providing ongoing support and counselling after discharge to help
with re-integration into home, school and the community
Doug Smith
Doug is a former captain of the Ottawa 67s and first round NHL pick. Doug is
a founder of The Ottawa Senator’s Alumni Association, spent 6 years on the
Ontario Board of Directors of The Canadian Paraplegic Association; and was
Director of Business Development during the creation and development of
the largest domain registrar in Canada (Internic.ca). He is also a co-founder
and past President of the thriving Arc Stainless Inc., an Ottawa based stainless
steel fabrication Company focussed on the medical and bio tech sectors. In
his lifetime, Doug has lived through challenges and successes spanning 3
industries. Having experienced some of the highest levels of transitional pain
sustainable, Doug understands the process required to first heal from old ways
of feeling and thinking, assess your surroundings and then accelerate life,
business and legacy.
Over 12 amateur and 11 professional hockey seasons Doug suffered over 30
concussions and a career ending broken neck and spinal cord injury. As a quadriplegic, Doug was left with nothing but his mind. Through determination,
awareness and a loving family he recovered and is pleased to share his story.
Dr. H. Jane Storrie, Ph.D., C. Psych.,
Dr. H. Jane Storrie, Ph.D., C. Psych., is a duly qualified Psychologist, registered in
the Province of Ontario. She received her PhD from the University of Waterloo,
and completed an internship in Clinical Neuropsychology at Hamilton Health
Sciences/McMaster University. She is a member in good standing with the College of Psychologists of Ontario, with declared areas of competence in clinical,
rehabilitation, and clinical neuropsychology.
Dr. Storrie is Past-President of the Canadian Academy of Psychologists in Disability Assessment (CAPDA). She holds the appointment of Assistant Professor
in the Faculty of Health Sciences, Department of Psychiatry and Behavioural
Neurosciences, at McMaster University, and was awarded Diplomate Emeritus
status by the American Board of Disability Analysts (ABDA).
She is Vice-President of the Brain Injury Association of Peel and Halton and a
Director of the Hamilton Medical-Legal Society. She is a member of the Hamilton Health Sciences/McMaster University Psychology Intern Committee and the
Ontario Psychological Association (OPA) Motor Vehicle Accident Task Force. Dr.
Storrie is Co-Chair of the OPA Prescription Privileges Committee.
She is a founding partner of Storrie, Velikonja & Associates (SVA), a full-service
psychology clinic located in Burlington, Ontario, and Co-Director of the SVA
Concussion Clinic which provides multi-disciplinary management of concussion
and post-concussive syndrome.
Irene Sullivan
Irene Sullivan is currently a disability counsellor with Accessibility Services at
the University of Toronto as well as the Clinical Coordinator of the St. Michael’s
Hospital N.E.A.R. Clinic, a third party clinic for the assessment and management
of traumatic brain injuries. She has worked in inpatient, outpatient and community rehabilitation settings for clients with traumatic brain injuries. She also
maintains a private practice in neuropsychometric testing. Research interests
include outcome research and best practices.
Jessica Taylor
Jessica Taylor was born to a show business family in Listowel, Co. Kerry, Ireland
in 1938. During her childhood years she was a professional actress and award
winning Irish Step Dancer. She owned and operated a Merle Norman Cosmetic
Studio in Ontario until her tragic accident in 1969,which resulted in a severe
life-threatening brain injury that took her years to overcome. However, against
all odds, she did, and now presents seminars along with having set up the
Jessica Taylor Foundation for head injury awareness, and a support group in her
home town Parksville, BC. Jessica wrote a book about her accident and recovery
which gives survivors “hope and inspiration” and has, to date, “saved three
precious lives”.
Mary-Ellen Thompson
Mary-Ellen Thompson is a speech-language pathologist who for the past 20
years has been working collaboratively with multidisciplinary teams to develop
comprehensive model for language and cognitive rehabilitation for brain
injured individuals in community settings. Mary-Ellen holds Honours Bachelor
of Science degree from McMaster University, a Master of Science degree in
Experimental Psychology from McGill University, a Master of Health Science
in Speech-language Pathology from the University of Toronto and a doctorate
degree from the University of Toronto, Institute of Health Science. Mary-Ellen is
currently president of the Brain Injury Association Quinte District. She is also a
member of the Research to Practise Network for Adults with ABI sponsored by
the Ontario Neurotrauma Foundation and a member of the Programme Committee for the Acquired Brain Injury Provincial Conference sponsored by the Ontario
Brain Injury Association. She provides in services and prevention workshops for
interested community partners. In 2010, she was awarded “Professional of the
Year” by the Ontario Brain Injury Association for “outstanding contributions to
improving the lives of those living with the effects of acquired brain injury”. As
well, Dr. Thompson continues to teach at the university level.
Karen Tims
Karen Tims is the Leader of CONNECT Lake Country. She has over twenty five
years experience working with people with disability. An Occupational Therapist,
Karen began her career in the brain injury field in the UK but has spent the past
fourteen years living and working in British Columbia. Karen joined the CONNECT
team in 2008 to help create a place that would be transforming; where best
practices in brain injury would be melded into a culture and model of service
delivery that promotes curiosity, elasticity, leadership and smart risk taking.
Michael Vassilyadi, MD, CM, MSc, FRCS(C), FAANS, FACS, FAAP
Dr. Vassilyadi completed medical school at McGill University and neurosurgical
residency at the Montreal Neurological Institute. His Pediatric Neurosurgery
fellowship was at the Montreal Children’s Hospital. He joined the Division of
Neurosurgery at CHEO in 1996. He is presently an Associate Professor of Surgery
and Pediatrics at the University of Ottawa. He operates on infants and children
with disorders of the brain and spine, including trauma. He teaches medical
students, residents and fellows. He presents at both National and International
conferences, has multiple scientific publications and is on the editorial board for
the journal “Pediatric Neurosurgery”.
Dr. Vassilyadi is an advocate for head and spine injury prevention. He is the Director of the Ottawa chapter of ThinkFirst Foundation of Canada. He volunteers
his time to deliver the message of protecting one’s brain, which he has done
to thousands of students (from pre-school to high school) and parents. Dr.
Vassilyadi has also addressed hundreds of Principals, Vice-Principals, teachers,
coaches and health care providers. Both the City of Ottawa and Public Health
have endorsed ThinkFirst as an excellent program and have partnered with the
Ottawa ThinkFirst chapter in many community events. He has developed an
interest in sport-related concussions in children, started a Concussion Research
Project Clinic at CHEO, and collaborating in concussion research projects with
other experts at CHEO, the University of Ottawa and in the community.
biographies / biographies
Jacqueline Vintar Smith
Jacqueline Vintar Smith is finishing her second year in Doctoral Studies and
Applied Research - Neuroscience in Special Education and Disability Studies at
the George Washington University (GWU) in Washington, D.C. She has a Master’s
Degree in Disability and Community Studies from the University of Calgary and
has completed graduate coursework in Educational Psychology at the University
of Alberta. Her research interests are in social identity and meaningful participation following acquired disability, and she has a special interest in Traumatic
Brain Injury particularly in youth from age 15 to 30 years. She is also interested
in the community-based education and professional development needs of
professionals and paraprofessionals who work with people with TBI.
Jacqueline has worked with persons with disabilities in community based
and government programs in Canada for over twenty years. She has been
a counselor, case manager and program manager for persons with TBI in a
community services program and played a role in developing the Alberta Brain
Injury Network, a provincial brain injury program. She was a case management
service team manager at Veterans Affairs Canada, and before coming to the U.S.
to pursue her doctorate, Jacqueline was a program developer and policy analyst
for adult-onset disability support services with the Government of Alberta.
In addition to being a student, Jacqueline is an adjunct instructor in the Special
Education department at GWU teaching an introductory course in TBI, and coteaching a course on supporting families of children with disabilities.
Kaitlyn Woods
Kaitlyn Woods is a Grade 12 student at Quinte Christian High School who has
lived with a brain injury since the age of 4. Kaitlyn is an active high school student who enjoys music, traveling, shopping, watching TV and movies. She is an
active volunteer with the Brain Injury Association Quinte District and maintains
their Facebook page. As well, Kaitlyn enjoys writing poetry and had one of her
poems published in the OBIA Calendar. She competes as a sprinter in the 100 m
ambulatory and has qualified for OFSAA. Previously, she was a member of the
Kingston Y Penguins Aquatic Club.
Dr. Richard Volpe, PhD
Dr. Richard Volpe received his PhD from the University of Alberta. At present he
is Professor and Projects Director, Life Span Adaptation Projects, the Institute
of Child Study, Department of Human Development and Applied Psychology
(OISE), University of Toronto. He a Bloorview Kid’s Rehab School Authority
Trustee, member and chair of the Best Practices Committee of the Provincial
Advisory Committee of the Ontario Injury Prevention Resource Centre (OIPRC),
member of the Prevention Committee of the Ontario Neurotrauma Foundation.
He has authored or co-authored nine books and sixty articles.
His current research deals with applications of prevention science, knowledge
mobilization, and the promotion of evidence informed practice.
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Mandate
Mandat
At the founding meeting in July 2003 in Montreal, Quebec, members from brain injury
associations from coast to coast, representing survivors, their families, and professionals
identified the need to create the Brain Injury Association of Canada.
Our mandate is to improve the quality of life for all Canadians aff ected by acquired brain
injury and promote it’s prevention. As well, BIAC is dedicated to facilitate post-trauma research,
education and advocacy in partnership with national, provincial/territorial and regional
associations and other stakeholders.
Lors de la réunion de fondation, en juillet 2003 à Montréal, Québec, les membres des associations
de traumatisme crânien d’un océan à l’autre, représentant les victimes, leurs familles et les
professionnels on pu identifier la nécessité de créer l’Association canadienne des lésés cérébraux.
Notre mandat est d’améliorer la qualité de vie de tous les Canadiens touchés par un traumatisme
et d’en promouvoir la prévention. En outre, l’Association canadienne des lésés cérébraux est
dédicacée à faciliter la recherche post-traumatique, l’éducation et la sensibilisation en partenariat
avec des organismes nationaux, provinciaux et territoriaux ainsi que les associations régionales et
les autres parties prenantes.
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to provide
patients.
Association Supporters
nd cost-effective delivery of patient care by
nary approach to care.
Thank you to our major donors, monthly donors and
donors in general.
2011-2012 Board of Directors
Les directeurs du conseil d’administration 2011-2012
Executive / Exécutif
President - Larry Carlson (SK)
Vice-President - Barb Butler (SK)
Vice-President - Jeannette Holman Price (NL)
Treasurer - Jane Warren (NS), Secretary - Barb Butler (SK)
Board Members / Directeurs du c.a.
Val Bergeron (MB), June Jeffries (BC), Jason Lye (ON)
Jo-Ann McInnis (PEI), Neil Nichols (BC)
William Pashby (ON), Mary Ann Peters (NB)
Marina White (NF), Shelly Wieser (AB)
Nunavut- vacant, NWT- vacant, Yukon- vacant
Staff and Partners / Employés et partenaires
Harry Zarins, Executive Director / Directeur général
440 Laurier Ave. West, Suite 200,
Ottawa, Ontario, K1R 7X6
Toll free: 1-866-977-2492
Local calls: (613) 762-1222
Fax: (613) 782-2228
E-mail: [email protected]
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