Resources - Centre de réadaptation Estrie

C e r e b ra l Pa l s y
1 4 - Re s o u r c e s
An informative Booklet for families in the
Children and Teens program
© Centre de réadaptation Estrie, 2008
Cerebral palsy - Resources
Re s o u r c e s
and
address book
for the
family
Child care services at home
Alliance sherbrookoise
pour l’autonomie à domicile
928 Federal Street
Sherbrooke (Quebec) J1H 5A7
Accommodation services
Service d’hébergement
La Maison Caméléon de l’Estrie
4761, Gaspé Street
Sherbrooke (Québec) J1N 2C7
( 819 562-6881
@ [email protected]
page 2
( 819 562-8877
Specialized in-home care and respite care services. Has a list of skilled workers providing care at home
to any disabled person (child, adolescent or adult without intellectual
impairment). Transportation assistance to take children to medical
appointments.
Short stay or weekend (Friday 17:30 Sunday 16:30) and services during
school holidays. This service is for
anyone with a physical or intellectual
impairment or with multiple impairments. The Chameleon House can
accommodate up to 8 children or adults
to sleep. A temporary accommodation
may be available under certain conditions. Day camps (playground type,
Monday to Friday) and adventure camps
during the summer period.
Services de garde
Cerebral palsy - Resources
Care services
The Centres for early childhood/Centres de la petite
Coalition of Centers for Early enfance (CPE) can receive grants
Childhood of the Eastern to facilitate the integration of a
Townships
disabled child. The CPE makes
the request to the Ministère e la
117, Wellington Street Nord
Sherbrooke (Québec) J1H 5B9 Famille et des aînés.
To enroll your child, apply
directly to the CPE of your
( 819 566-7131
choice.
@ [email protected]
For a list of CPEs, you can
contact the Coalition.
Réseau d’appui aux familles
monoparentales et recomposées
de l’Estrie (RAME)
1050, Jardins-Fleuris Street
Sherbrooke (Québec) J1J 1J5
(
819 822-3451
Drop-in daycare service (occasional). Designed for parents whose
children are between 2 and 5
years old. A program that works
on the overall development of the
child. Daycare is also possible for
a full day or half day.
Different organizations linked with cereb
Office des personnes
handicapées du Québec (OPHQ)
200, Belvédère Street North
Sherbrooke (Québec) J1H 4A9
(
:
@
819 820-3771
1 888 820-3771 (sans frais)
www.ophq.gouv.qc.ca
[email protected]
Handles regional coordination of
services to persons with disabilities.
Information, advice and references.
Cerebral Palsy Association of
Quebec
988, Galt Street West, PO Box
Information, guidance and loan of
1781
Sherbrooke (Québec) J1H 5V8 specialized equipment.
( 819 829-1144
@ [email protected]
page 3
Cerebral palsy - Resources
Different organizations linked with cerebral palsy
Mouvement d’Aide
ParalysieCcérébrale de l’Estrie
(MAPLACE)
PO Box 6094, Stn. Rock-Forest
Sherbrooke (Quebec) J1N 3C8
Services provided: assistance,
referrals, information, partnership,
public awareness, equipment, funding, and community life.
Possible activities for families.
( 819 566-2931
@ [email protected]
Association Épilepsie-Estrie
1131 du Conseil Street, apt. 103 Coalition for support and information about epilepsy
Sherbrooke (Québec) J1G 1M
( 819 822-3217
@ [email protected]
L e i s u r e & Re c r e a t i o n
Association régionale pour le
loisir et la promotion des personnes handicapées de l’Estrie
(ARLPPHE)
5182, Bourque Boulevard
Rock Forest (Québec) J1N 1H4
( 819 864-0864
@ [email protected]
Le Galopin (equestrian center)
3737, Labbé Street
Rock Forest (Québec) J1N 3B7
( 819 563-2727
@ [email protected]
Cahokémi (centre équestre)
705, du Ruisseau Road
Ste-Catherine-de-Hatley,
(Québec) J0B 1W0
References to organizations providing recreation for people with
physical, intellectual or sensory
impairments.
Services: support for projects to
develop recreation for disabled
people and information / guidance for summer camps.
An organization that promotes the
use of equestrian-based therapeutic and rehabilitation activities.
Non-profit organization that uses
horseback riding and animal therapy for therapeutic goals, rehabilitation, sports and recreation for
people with special needs.
( 819 437-6094
@ cahokemi-ferme.equestre@hot Pr o g r a m m e s e t s u b v e n
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mail.com
Cerebral palsy - Resources
Pr o g r a m s a n d g r a n t s
Equipment and supplies
You can get a grant for special equipment and medical supplies (to
cover, for example, the cost of diapers for children over age three).
You must apply either through your Health and Social Services Center
/ Centre de soins et de services sociaux (CSSS), the Local Community
Service Centre / Centre local de services communautaires, (CLSC) or
your local employment office if you or your child are receiving
Employment Insurance.
The transport-accommodation program
You can have your travel and accommodation expenses reimbursed if
your child needs medical treatment or rehabilitation frequently or on an
ongoing basis in a rehabilitation center or a hospital. Apply through your
CSSS /CLSC.
Living environment (at home)
You can get services or a grant for keeping your child at home if he
requires physical assistance (for example, bathing a child who
becomes too heavy to lift). You should contact your CSSS/CLSC.
Re s i d e n t i a l a d a p t a t i o n p r o g r a m a n d s e r v i c e s
You can get a grant to adapt your home (house or apartment) to make
it accessible. You may need a ramp, wider bedroom doors or to rearrange the bathroom. Contact your municipality and discuss it with an
occupational therapist.
For more information about the Programme d’adaptation de domicile
(PAD) (the residential adaptation program), you can contact the
Housing Corporation of Quebec.
( 1 800 463-4315 (toll-free)
: www.shq.gouv.qc.ca
Société de transport de Sherbrooke
(Ascot, Bromptonville, Deauville, Fleurimont, Lennoxville, Rock Forest, Saint-Élied’Orford)
If your child is not able to use regular public transit, he can have
access to adapted transit services in your municipality.
( 819 564-2687
: www.sts.qc.ca
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Cerebral palsy - Resources
Pa r k i n g s t i c k e r s f o r p e o p l e w i t h d i s a b i l i t i e s a n d a d a p t e d
vehicles
Form available at the Société d’assurance du Québec (the Quebec
automobile insurance board or SAAQ)
(
819 820-3053
1 800 361-7620 (toll-free)
Income
Supplement for handicapped children
The supplement for handicapped children is a financial assistance
measure which is intended to help families assume responsibility for,
and provide for the care and education of a child whose physical or
mental health significantly limits his daily life activities for at least
one year. Whatever their income, families with a disabled child can
claim the Supplement for handicapped children, the amount of which
is the same for everyone. Contact:
Régie des rentes du Québec
(
819 820-3575
1 800 667-9625 (sans frais)
: www.rrq.gouv.qc.ca
Child Disability Benefit (CDB)
This is a non-taxable benefit, paid by the Government of Canada, designed for families with low or moderate income who care for a child
under age 18 with mental retardation or severe, prolonged physical
impairment. The CDB is added to the monthly Canadian child tax
benefit. For more information, contact:
Canada Revenue Agency
( 1 800 387-1194 (toll-free)
: www.cra-arc.gc.ca/benefits/cctb/menu-f.html
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Cerebral palsy - Resources
Ta x d e d u c t i o n s
You can claim tax deductions for a dependent disabled child or disabled person at both the provincial and federal level. Ask for explanatory brochures and forms at:
Revenu Québec
« Taxation and persons with disabilities » (IN-133)
( 819 563-3034
1 800 267-6299 (toll-free)
: www.revenu.gouv.qc.ca
Revenu Canada
« Medical and Disability - Related Information » (RC4064)
( 819 564-5888
1 800 959-7383 (toll-free)
: www.ccra-adrc.gc.ca/handicape
Useful internet addresses
w w w. l a c c o m p a g n a t e u r. o r g
A helpful website for parents of disabled children.
w w w. s o s a i d a n t . c o m
Website to promote meetings between caregivers and those seeking
services.
w w w. p e t i t m o n d e . c o m
The Web magazine for parents.
w w w. o p h q . g o u v. q c . c a
Guide to family assistance needs.
w w w. i n s p q . q c . c a
Website of the National Institute of Public Health which presented the
online version of Mieux vivre avec votre enfant, de la grossesse à deux
ans
( Living well with your child, from pregnancy to two years).
w w w. a n d y l u d i k . c o m
An online store for persons with functional ,physical, intellectual or
mental limitations.
w w w. c o n s o r t i u m p c . c a
This organization seeks to facilitate social participation of children 0
to 18 years of age living with a person with cerebral palsy.
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Cerebral palsy - Resources
w w w. m s s s . g o u v. q c . c a
Website of the Ministry of Health and Social Services. Information on
financial assistance measures for families with disabled children.
w w w. m f a . g o u v. q c . c a
Website of the Department of Family and Seniors. Information on
financial assistance measures available to families.
Suggested reading
L’apprentissage des sons et des phrases. Un trésor à découvrir
Beauchemin Maryse et al., Montréal, Édition du CHU Sainte-Justine
and co-published with the City de Santé de Laval, 2000, 112 p.
( 514 345-4672
: www.chu-sainte-justine.org/editions
Au-delà de la déficience physique ou intellectuelle – Un enfant à
découvrir
Ferland Francine, Montréal, Éditions du CHU Sainte - Justine, 2001,
232 p.
( 514 345-4672
: www.chu-sainte-justine.org/editions
Déficience motrice cérébrale, document pour les parents
LAJEUNESSE Ghislaine et al., Québec, Centre Cardinal-Villeneuve,
2005, 20 p.
( 418 529-9141, poste 4000
: www.irdpq.qc.ca
Le développement de l’enfant au quotidien – Du berceau à l’école
primaire
FERLAND Francine, Montréal, Éditions du CHU Sainte-Justine, 2004,
248 p.
( 514 345-4672
: www.chu-sainte-justine.org/editions
Mieux vivre avec notre enfant de la grossesse à deux ans
Édition 2008, Quebec National Institute of Public Health of Quebec,
656 p. ~
418 529-9141, ext. 4000
: www.inspq.qc.ca
page 8
Cerebral palsy - Resources
Et moi alors ? Grandir avec un frère ou une soeur aux besoins particuliers
BLAIS Édith, Montréal, Éditions du CHU Sainte-Justine, 2002, 108 p.
( 514 345-4672
: www.chu-sainte-justine.org/editions
Et si on jouait ? Le jeu durant l’enfance et pour toute la vie
FERLAND Francine, Montréal, 2e édition, Éditions du CHU SainteJustine, 2005, 212 p.
( 514 345-4672
: www.chu-sainte-justine.org/editions
Pour favoriser l’estime de soi des tout-petits
LAPORTE Danielle, Montréal, Éditions du CHU Sainte-Justine, 1997,
128 p.
( 514 345-4672
: www.chu-sainte-justine.org/editions
Le langage, c’est pas sorcier
RENAUD Marie-Josée, Québec, CHUQ – Centre de l’ouïe et de la
parole, 1999, 22 p.
( 418 627-2250
Adresse : CHUQ-COP, 301 A, des Peupliers Est
Québec (Québec) G1L 1S6
Le nouveau Guide Info-Parents
GAGNON Michèle et al., Montréal, Éditions du CHU Sainte-Justine,
2003, 464 p.
( 514 345-4672
: www.chu-sainte-justine.org/editions
Children with cerebral palsy – A parent’s guide
Edited by Elaine Geralis, foreword by Tom Ritter
Second Edition, Woodbine House, 1998, 481 p.
ISBN 0-933149-82-4
Prendre un enfant par la main. Petit guide de communication au
quotidien
Nadia Lagha et al., Montréal, Association de paralysie cérébrale du
Québec, 1993, 20 p.
(
514 257-4341
page 9
Cerebral palsy - Resources
Pe r s o n a l N o t e s
page 10
pair
Cerebral palsy - Resources
Pe r s o n a l N o t e s
page 11
w w w. c e n t r e d e r e a d a p t a t i o n e s t r i e . o r g
Centre de réadaptation Estrie
300 King East, Suite 200
Sherbrooke (Quebec) J1G 1B1
T: 819 346-8411 F: 819 346-4580