Minisymposium News in the management of the Tuberous Sclerosis

Minisymposium
News in the management of the Tuberous Sclerosis Complex
Organized by the CHUV-TSC network
Wednesday March 26 2014, Auditoire de la Maternité, CHUV, Lausanne
14:00 : Welcome. O. Bonny
1. Treatment of the Tuberous Sclerosis Complex (in English)
Chair : Dr. S. Lebon and Dr. H. Chehade
14:10 : Pr. K. Kotulska, Warsaw : EXIST1 and EXIST2 trials: efficacy and safety of everolimus in TSC
14:50 : Dr. A. Serra, Zurich : Risk/benefit of long term rapamicine treatment in chronic diseases
15:30 : Pause
2. CHUV TSC-network – Le réseau « Sclérose tubéreuse de Bourneville » à Lausanne.
(in French and/or English)
Chair : Dr. F. Barbey and Dr. F. Fellmann
16:00 : Skin-La peau : Dr. S. Christen, CHUV, Lausanne
16:20 : Brain-Le cerveau: Dr. C. Wider, CHUV, Lausanne
16:40 : Lungs-Les poumons : Dr. R. Lazor, CHUV, Lausanne
17:00 : Kidneys-Les reins: Pr. O. Bonny, CHUV, Lausanne
17:20 : Genetics-La génétique: Dr. F. Fellmann, CHUV, Lausanne
17:40 : Les initiatives: 1. Swiss TSC network and registry / 2. L’association de patients STB-Suisse
18:00 : Fin du meeting
The meeting is endorsed by the Working Group on Inherited Kidney Disorders of the Swiss Society of Nephrology.
CME credits: Swiss Society of Nephrology: 3.5h; Swiss Society of Medical Genetics: 3h.
Pr Franz and Dr Serra lectures and travel expenses are supported by Novartis and the Association STB Suisse.